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    Post-exertional malaise in veterans with gulf war illness, 2019, Lindheimer Cook et al

    Does this then relate to the postulated TH1 v TH2 immune response difference between GWI and ME ? If so could it hone in on the " something in the blood" ?
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    Post-exertional malaise in veterans with gulf war illness, 2019, Lindheimer Cook et al

    24 hours is not peak PEM for us. How and what was measured? Questionnaires or something objective?
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    Pain in ME–what helps you and what can I do?

    Yes you get drops, which also avoids filler/ capsule issues. However if female, you may also have titrate differently to adjust for monthly cycle. If itchy at mid and end cycle it could be ( if pre menipausal) that the estrogen: progesterone ratio is out of whack and this can impact seratonin...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    are they not aware of the organo-phosphate findings?
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    Pain in ME–what helps you and what can I do?

    If you are itchy due to estrogen issues you may need to titrate any seratonin modifying drug carefully.
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Timing is usually key - it's a distraction. Usually coincides with conference / publications / to counter positive developments and try to control narratives .
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    UK: MRC and NIHR announce ME/CFS workshop, November 2019 & ME/CFS Biomedical Partnership FAQ

    There is a vote and also an opportunity to comment
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    MEAction: "DEMYSTIFYING THE DIAGNOSTIC CRITERIA FOR ME AND RELATED DISEASE"

    I think vocabulary feeds into this. Over time terms have been bastardised, or their impact/ use has changed with mainstream use. My daughter feels she struggles to get people ( including medics) to understand how it affects her, mainly as the symptoms, such as fatigue, dizzy, etc are not...
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    Body mass in adolescents with chronic pain: observational study - Gauntlett-Gilbert, Bhat,Clinch 2019

    We observe an inverse correlation. Body mass decreases , pain increases.
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    Top research priorities in healthcare-associated infection in the UK, 2019, Wilson et al.

    Didn't work for me
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    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    GIGO
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    RCPCH conference 2019 abstract: When symptoms dictate a young person’s life..., Gamper et al.

    This
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    RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

    I recall a previous thread touching on what looks like the same child. Is this a different paper? This is 2nd one from UCH . Timing is everything.
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    RCPCH conference 2019 abstract: Characterisation of population... service provision... outcomes for young people with CFS in... inpatient.. Doukrou...

    UCH has been mentioned previously, I can't remember if it was they who had the awful treatment pathway poster, but I can remember mixed experiences on forums . @Tilly
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    Gary Burgess - The ME show, and updates about Gary's health.

    Sorry to hear this @Gary Burgess . Thinking of you and sending you good wishes for you and yours. Take care of yourself.
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    Abnormalities in the urine of people with ME/CFS? A clinician asks for feedback

    Yep, they out something in it so that you know there is a leak. So what do they add?
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    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    Thank you
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    Identification of actin network proteins, talin-1 and filamin-A, in circulating extracellular vesicles as blood biomarkers...ME/CFS 2019, Eguchi et al

    do we know the male/ female split in this? has the analysis been done separately re male/ females given that we know there are differences in metabolism and expression (and the one non heriditary gene found by Chris Ponting was females only) could this be relevant?
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    Podcast: CBT for Chronic Fatigue Syndrome: Dr Lucy Maddox, Trudie Chalder

    This is the kind of thing that would be good if charities commented to kick into touch. When this kind of information goes unchallenged nothing changes. @Russell Fleming @Action for M.E. @phil_in_bristol
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    Closed England & Wales: Survey: Involving adults with severe ME/CFS symptoms in developing a NICE guideline on ME/CFS

    Seems like some similar issues to the paediatric survey. Perhaps in future those whom the survey is aimed at could advise re a range of formats for information capture. Sadly a one size fits all doesn't t work
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