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    NZ - Complex Chronic Illness Support - Towards Wellness course

    Again the takeaway issue is the conflation of chronic fatigue ( in all its manifestations) with ME. If a clear diagnosis cannot be made, then this is what happens when everyone is lumped together.
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    UK - Discussion of how many patients use NHS ME/CFS clinics

    Is this solely related to England ( and Wales) or is it meant to be UK based?
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    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Thank you.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Hmm. There is usually significant missing data but little effort to explore the reasons for this. I suspect researchers understand why this may be, yet little is done to follow it up. Perhaps worth highlighting too.
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    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Much appreciated @dave30th . This is the kind of paper which will no doubt be in the evidence for NICE ( together with FITNET and MAGENTA).
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    UK - Discussion of how many patients use NHS ME/CFS clinics

    As far as I know, Scotland has 3 locations for clinic type " support" 1 clinic in Western Isles (perhaps related to organophosphates?) Integrated Care Centre, Glasgow (formerly homeopathic hospital - offers meditation etc) Edinburgh - this is the clinic I think that @Emsho attended for GET...
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Great news thank you
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    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    @Brian Hughes . A critique of FITNET and MAGENTA in due course would be appreciated, as these will inform NICE deliberations and seem to be full of similar issues.
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    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    @Emsho note scottish guidance.perhaps something for MEAction. There is an even worse one for kids from psychologists for NHS Scotland.
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    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Tagging @mariovitali
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    Cochrane ME/CFS GET review temporarily withdrawn

    The question is by whom ?
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    The Clinician’s Vaccine Safety Resource Guide 'Do Vaccines Cause Fibromyalgia or Chronic Fatigue Syndrome (CFS)?'

    Is it the vaccine itself or the adjuvent that is implicated?
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    Blood test ranges and low blood volume

    Low cortisol common - also tie in with endocrine symptoms.... Hopefully the current research into hormones may shine a light on this area
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    Blood test ranges and low blood volume

    Thanks. It would be interesting to know if this has been looked at in ME , particularly given @alex3619 ' s comments re absolute counts. Does anyone know if this has been studied? I would love to think that all the feedback systems work as intended : calibration is a finicky thing.
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    A list of people who applied for the NICE ME/CFS guideline group but who were not accepted

    This succinctly sums things up.
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    Blood test ranges and low blood volume

    Thank you @Jonathan Edwards . I had mistakenly thought that there would have been some effect ( to have same range for a reduced volume did not make sense to me - like homeopathy in reverse. ) More confused than ever.
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    Blood test ranges and low blood volume

    This is an aside, but interesting. I am doing a part time course, so I sit in on the full time classes for the modules that I have chosen; there are a number of modules that different courses share as part of the syllabus. Monday morning is a carbon management module, and the other course...
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    Action for ME GP webinars

    Bump - no response still Slide with GET recommendation still in place on dropbox link
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    Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

    bump - still to have a response to this
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