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Is there no PVG process in England / Wales/ NI? In Scotland if you work/ regularly volunteer with groups classed as vulnerable , you have to be vetted via a national scheme: there are degrees of checks depending on the interaction. It is only as good as the records that are checked. I have to...

In our case it was under the direction of an endocrinologist. The head if dept and a professor.Main focus diabetes as i suspect is the case for many UK endocrinologist s. I think he did want to be able to do something, but seized on a lowish base cortisol level without trying to understand why...

This may be interesting for some given the changes in metabolism . Tagging @mariovitali re LXR role https://www.cell.com/cell-reports/fulltext/S2211-1247(18)31696-6#.W_Qs9gPOjZg.twitter

Thanks @Hutan. I did wonder re the time period represented. We have done hair testing for electrolyte balance and this was simply dismissed by medics. Showed significant issues.

I hope that you fully recover from the experience.

Is hair a good indicator of cortisol status?

Yes. Low barometric pressure is a huge issue - used to also spark migraines ( though not so many of these now)

Yes to increased pain/ symptoms before and during. Reported as feeling " ill" or as if about to come down with something. Periods have been erratic and of differing length, but seem to have settled to within a week or so of previous cycle lengths- that said it could change again!

Very interesting . I will discuss this with my daughter, but would agree from standing on sidelines that cognitive overexertion seems to have a different manifestation - subtle but different. We are finding that pain is ramped up at certain times of monthly cycle, so PEM then is more acute ...

All the more important that @dave30th makes an appearance .

The neurocognitive functioning being classed as normal in the CFS comparison sticks out ( until you perhaps realise that this is probably children with chronic fatigue), and this is a big issue, particularity with published papers being reviewed by NICE. I do not know of any parents of kids...

Interesting from Twitter. It seems a mental health conference did not go down well Some aspects may sound familiar. I have not dug very deeply, but it seems UK mental health initiatives are not universally appreciated deeplys://www.magonlinelibrary.com/doi/10.12968/bjmh.2018.7.5.198

Thank you.

Hydrocortisone was a huge set back for my daughter. Endocrinologist suggested this due to low base cortisol level ( yet good acth response) . Still to recover fully. ( And she was making progress) De Vega has a number of papers re glucocorticoids and ME. Good pre reading if you are considering...

would love to know what this meant?

This was formerly the homeopathic hospital which has been subsumed into NHS

Is this worthwhile highlighting to the new organisation at Bristol re research standards?

There was a twitter thread this morning re NICE panel member I'm rubbish on twitter and couldn' t find full thread but this may be worth checking out ( for those that understand how it works!). More of a need for Dr Speight

Well done @Emsho and team. You seem to have hit the spot ! Thanks. Just need the whole GIRFEC/ data sharing / named person issue for kids hit on head now too...

If only Nigel Speight could have the same luck- EC' s studies would have some context provided from someone who acknowledges severe ME in children.. Great news though.