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The whole thing is like a version of jenga. I think Cochrane are wondering just which stick to pull out .

Contrast with the HPV review could not be more stark.

Thank you. Downloaded to PC. Perhaps worth publicizing on Twitter?

Where are the charities on this? The IAPT programme is not new, it dosn' t take much savvy to see the planned progression.

Wow. In context of current situation it may be worthwhile making these extracts public.

Thanks. Sometimes good just to bounce stuff off someone! Sadly professionalism lacking from endo and head gp in practice had huge lack of knowledge.

Is it ok to PM on this one ? I would like to attach a couple of photos that have been agreed to share privately?

General rheumatologist, who took a thorough history, asked questions re sjorgen' s, pain and did exam. My daughter is not super flexible , however chiropractor had picked up hip issues, jaw/ shoulder, and joints being "hypermobile" - very easily adjustable and would provide copy notes . Chiro...

Thanks for replies. I think electrolytic balance is definitely affected. ( probably blood volume effects too) We have just sent off a hair test (did one at the beginning of the year and results were not good for electrolytes) to see what movement there has been. Magnesium seems to be an issue...

MJW heads up the children section of AfME

There is little love lost between these organisations. As a gesture it may signify a new approach.

Symptom improvement at the start of the year has been reversed for my daughter. ( age 17) The brief hydrocortisone experience appeared to be the turning point ( backwards). However this may be coincidence. Within the past month the following have ramped up in intensity Jaw and neck neck pain...

Wow! Amazing work. I hope that you have not deteriorated doing this. Thank you.:trophy@:balloons:

CFS comes under psychological therapies remit under CAMHS in Scotland.

Such a project exists http://www.luminarybakery.com

The direction ofvtravel has been signposted by research funding. CBT has had so much money it must offer some bang for the bucks Check out @Keith_Laws’s Tweet:

From the other place- a couple of interesting links re phenylalanine / endocrine system/ trytophan. https://www.nova.edu/nim/broderick-and-craddock-article-in-intl-innovation.pdf https://phoenixrising.me/archives/5396

I think the lack of defined recovery (and potentially lack of consistent recovery definition) and relative stats is something that NICE should be made aware of during the guideline process. How can you claim recovery without such basic information?

Perhaps something for @Jonathan Edwards notebook

Is there a definition as to what constitutes recovery ?