Search results

  1. A

    Action for ME: Our new years resolutions

    Yes. The GP info that requires revision and contacting GPs who have undergone these modules to ensure they are aware of the dodgy info.
  2. A

    Action for ME: Our new years resolutions

    Unfortunately it' s trendy and beloved of graphic designers for the past 4 years. Most government, quango and somevthird sector reports have this presentation . It can impart figures in a way that makes them easier to grasp . However it always seems like i am back in primary school when i look...
  3. A

    A general thread on the PACE trial!

    I suspect it may have been as professional a process as the FITNET study offering a cure in the initial blurb... ( Cynical again )
  4. A

    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    Some nutritional deficiencies will manifest as anxiety. In many chronic diseases there may be such deficiencies, due to gut dysbiosis/ genetic/ epigenetic expression..... Sadly, this is rarely considered. @Hip had a thread at the other place re anxiety and supplementation that made a lot of...
  5. A

    The use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service (2018) Haig-Ferguson et al.

    "Evidence based" treatment . Hmmm
  6. A

    Hannah Rapley thesis incl. staff’s experience & knowledge of fabricated or induced illness within a paediatric chronic fatigue setting

    @Tilly . Perhaps you would like to elaborate on the FII aspect, as it may be something that is not appreciated? It' s a bit like CBT for ME in both its underlying tenets, and its universal applicability. Edit spelling
  7. A

    Hannah Rapley thesis incl. staff’s experience & knowledge of fabricated or induced illness within a paediatric chronic fatigue setting

    Does this follow on from / is related to the " safeguarding" conference? Seems a very similar content. There is now a body of " research" being produced which needs to be carefully and systematically reveiwed, and where appropriate, seriousky debunked. FII may have curious concentrations of...
  8. A

    Obesity in adolescents with chronic fatigue syndrome: an observational study, 2016, Norris et al

    My daughter has the opposite problem.
  9. A

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    Yes, a friend' s sister was much improved during pregnancy and worse afterward. Immune system switch may make sense and would seem to be worth studying. It would be interesting to see metabolomics and immune expression before during and after pregnancy ...
  10. A

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    Hormones and immune system changes ,? Edit to add immune system. Pregnancy seems to both instigate and mitigate - has any study been done on pregnant ME women to monitor hormone / immune parameters?
  11. A

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Thanks. I had thought that there were other treatment options available. As you and strategist have pointed out, this did not seem to be the case.
  12. A

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    It would be interesting to see how informed consent was for this trial. Given what is known about interferon , what risks were explained to participants? Were they all aware that potentially there was a ?% chance that they would not recover?
  13. A

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    I have not read the paper, so this may be drivel. To me it is not one thing, one expression that we should be lookong for in a systems condition. It is combinations which may be expressed more significantky in ME/ CFS. It is a systems condition and expression will be modulated by original...
  14. A

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Changing which format of the chalder fatigue scale you use to try and achieve a reportable p- number?
  15. A

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Not to mention contacting GPs who have done their CPD webinars and letting them know that the info is not pukka.
  16. A

    Dr Karl Morten - UK researcher based at Oxford University

    Thank you Norman Booth. He pestered and pestered re mitochondrial research until someone was interested. Great that it is Karl Morton
  17. A

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Thank you for this reassurance. However i have a feeling that the deckchairs are currently being nailed down. There seems to be a subtle realignment underway, for which the treatment may well be CBT. I hope that i am wrong.
  18. A

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    "Scientifically robust" seems like an oxymoron in this context.
  19. A

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Really? Words fail me
  20. A

    B12/Folic Acid and D3/K2 Supplementation

    I' m tagging @JaimeS as i believe that she has had issues with B12. My aunt cannot take B12 she has had a horrendous reaction on both occasions that she tried. I don' t know which version she took - methylated versions may be an issue for some people. This is unusual as most of the literature...
Back
Top Bottom