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Note that the legal processes are under review in UK. The legal input is effectively being downgraded as i understand it ( may becsrong)

Perhaps the Scottish Parliament too given yhey fail to understand GET and CBT issues?

Probably wrong thread, but a great tweet re quality of Lancet peer review Check out @KurtLass1’s Tweet:

There was an app promoted by Bath which was available via NHS, around 4 years ago. But when i looked into it, it was no longer available . Activity management app.

Is there a procedural method to enable a " right of response" ?

Similarly my daughter broke bones in her wrist / arm after a fall in the playground when she was 10. Her knee was a mess and diverted staff attention so it took an hour or so for them to phone after she complained about wrist pain. OH arrived. Complained that she had been left with another 10...

Reviewed by whom ?

Skim read. Awful.

This

Fructose/ steroids - liver?

This is from Twitter this morning. It is related to the roll out of universal credit and appears to be related to a meeting/ seminar with stakeholders and/ or interest groups and DWP. The tweeter' s interest is mental health, but i' m pretty sure the attitude would traverse a range of...

My concerns were what effect it would have on a developing brain . I could not find any info re testing on children.

Yes, it' s the go- to for sleep and pain. The only prescription our paediatrician would countenance. Lots of kids on this .

May have been my MP. She requested bullet points yesterday

TSH is a bit of a blunt tool - from the Lapp paper posted earlier:- Thyroid function tests. TSH is least important due to HPA Axis suppression in ME/CFS. Free T4 and/or total T3 there has been research re issues with glucocortinoids, and a higher prevalence of low T3 has been found in ME...

I have had a response from my MP who has confirmed that she will speak during the debate. This is great news. She is a breast cancer surgeon, cuts through crap and takes no prisoners. Great bullshitometer.

Wow. Spin off companies are not what they used to be ....

This paper is important - it helps differentiate conflated conditions and helps place figures for " recovery" in context. Definitions of recovery ( i have yet to see a paper where this is actually back to pre ME functioning) and the actuality eg - the international paediatric primer s...

My daughter does not have full sleep inversion - good days falls asleep around 2-3am, but in PEM can go to 5-7 am. If she " naps" during the day sleep gets worse. Sleep hygeine was a major input into a significant crash from which she did not recover back to baseline. We worked sleep back to...

Given that your tenacity is effecting change please keep going!!! I have significant reservations that MUS / FND and IAPT will simply perpetuate issues in the UK- there are too many empires in existence/ being built to enable the change that is desperately needed to happen. NICE review could...