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I'm glad that something is helping - hope it continues.

Thanks Trish. She can walk around 100m with a stick but usually pays for it if it's done in one go - feeling faint, breathless etc edit added detail

Our application for a blue badge has been turned down. My daughter is a bit upset, she had anticipated getting out and about a bit more, she is effectively housebound. I applied on her behalf in autumn, unfortunately a follow up information request went to her spam folder in November. I cleared...

I probably picked it up wrongly then. I had read it as doing things is ok up to a threshold ( like pacing) as long as the usage ties to supply then you are ok. Doing things for too long or something intensely is like the energy currency being uncoupled - the recycling rate does not rise to...

If my daughter overdoes it the impact does not fully hit til 48 hrs after. It' s a bit like 2 day after gym feeling but worse- with swollen glands, brain fog, muscle ache, sore joints etc. The day after there is less energy and typically sore and joints,head and dizzy feeling, but second day...

I found this on the other place in a post by @Hip on the McLaren-Howard, Myhill , Booth papers. It did seem to make a lot of sense. It dosn't explain what instigates the issues with energy demand and supply mismatch ( which could be signalling etc ), but it does give a mechanism to explain the...

Re paediatric categorisation above for "severe" as being ‘effectively housebound’ and the most recent paper in this thread where " severe" children attend school???? It would be good to have a consistency in being awful,but even this seems too much to ask for...

fatiguability rather than fatigue as a function of activity

GIGO

BBC Scotland have been relatively good coverage wise.

could we be a comparator arm as a quick route in?

Its available on kindle https://www.meassociation.org.uk/shop/books/mecfspvfs-an-exploration-of-the-key-clinical-issues/ Edit - added link

Vit D and active VitB12 ( might be via MMA) , urinalysis. Full thyroid not just TSH. Comparuson of tests is worth highlighting- things may be within " normal" ranges but move - you can pick up on glucose and thyroid changes, and liver function changes It would also be worth flagging up that...

Excellent podcast as ever. Just keep doing what you are doing , it' s making a difference

Greg Purdie did back up a lothian clinic' s opinion that GET and CBT seems to help some people at a seminar i went to a couple of years ago. I was a lot less knowledgeable then to engage in meaningful discussion around this.

More insidious - many of the IAPT providers are private companies with ex NHS staff fronting them.

Ah but Simon makes your problems disappear...

Did they fail - they were propped up with taxpayers money and allowed to continue in much the same vein, with an Elastoplast of debt to capital ratio tweaking. No significant changes to operational methods, no split of casino banking. Enough superficial soundbites to pacify most people and...

Follow the money

Given the research seems to underpin IAPT andvthe rebranding of MUS and FND i fear the extent of this is akin to the banking crash and the system is simply " too big to fail"