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Given the prevalence of gut issues in those with ME and abnormal metabolism being highlighted by different researchers, I'm m keeping an open mind. However if root cause is not determined I can only see potential temporary respite being obtained via FMT. I believe there was someone on PR...

Did the 2 who found no MUS perhaps find something else? Whilst many GPs could brush up communication skills , this should not focus at being able to label MUS via a semi structured BPS format for consultations. How exactly were GPs advised re improvement

Stating the obvious has become an art form, but perhaps cognitive reinforcement is required for the consultant team. I sat in on an educational psychology feedback workshop, which due to parents present was mainly concerned with autism, dyslexia and placing kids in appropriate schools at...

You can get GI Map stool test done privately - I don't know of NHS does this . We opted for this and it has been illuminating. Sadly does not mean much to GP but highlights bacterial balance tending to fermenting upper gut, bacterial dysbiosis ( not enough good bacteria) C Diff and drug detox...

My aunt is a Myhill patient. It is not wonderful, she cannot do keto and generally had a good diet pre ME, so minor tweaking , only. But she is listened to, has a key role in her illness and has had access to testing not available on NHS. Here we have nothing combined with a GP medical...

How does this tie in with previous T cell research? Do we know if other T cell research involved anyone taking Ami / Notriptyline which may have affected results given above?

If this can only be delivered according to protocol at a single site is the protocol not adequately defined/ are staff less engaged with the process ? I thi k more detail is needed for dropping a whole cohort. ( how much does this affect stats?) I simply don't understand how any child with ME...

This

Very true. Unfortunately quantity of life is often at the cost of quality of life. We invent new conundrums .

Somewhat sad - wonderful euphemism. This is where language matters.

Another ship setting sail .......

This. BBC Scotland radio have been supportive of ME and given generally good coverage. CS has been interviewed a number of times and the phone in is good at getting across levels of debility and how life changing ME is. I am sure that there are other local stations too who have done...

But if they did that there would be a distinct lack.of papers!

Sadly this perpetuates a mindset ensuring that if/ when EC leaves the field everything continues as " business as usual" for a particularly vulnerable patient group. We really need charities/ biomedical researchers to lead on this and expose it for what it is. If it is too uncomfortable...

Do they not take a hint.

Thanks. I feel a bucket load of coffee is needed to get any brain function today!

This reminds me of an article I read late last year/ early this year. A psychiatrist was tasked with introducing antidepressants into areas of Vietnam. He met with a " village head " to explain how lives could be improved and was taken aback when told categorically that pills were not needed...

All calories are not equal. The body uses different macronutrients in different ways. Depending on your metabolism and genes it may be easier/ harder to burn off fat etc