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From the MERUK write up it reads as though testing followed a 90mins exertion period - if delayed impact/ delayed energy availability (like PEM) is part of the illness profile would it not have been illuminating to have looked at a number of time points. 90 mins exertion may impact more...

How many unpublished trials are there for ME,? From their hypotheses/ subject matter what does this say? I had hoped Amalok Bansal' s glucocorticoid receptor trial would be published as the theory made a lot of sense from our experience. Then of course are BPS ones - non publication may...

Facts need to be communicable. We sometimes forget that because we have all read papers and discussed minutiae that others will understand/ appreciate things on the same level. They don't. Even remotely. I found that placing figures in another context helps. So making prevalence rates as a...

Is it no surprise this is from Bristol?

Negatives can be as, if not more, illuminating as positives. Often in design people know what they don't want rather than what they do. Often you can get to a solution by knowing what not to do. It's an elimination process as well as a creative one. The literature is seriously incomplete...

Definitely muscle weakness, vision issues and wordfinding ( and recently mouth working - muscles make it go " floppy"), breathing are all affected in PEM

so the house of cards continues until after the NICE review, how convenient. It would be interesting to know how many other illnesses with the same type of evidence base are under/ due for review in the next couple of years I generally find most medics have a poorer grasp of statistics and I...

This is a 3am idea for a thread, and therefore may not make sense, but I have been struck by the lack of curiosity by medical staff to look into things, either when Tests are not normal but not " bad" enough There is an unexpected response to something There are signs that something is not...

From workwell , ( and myhill) it is the type of exercise when someone is mild. GET is simply the completely wrong approach.

There seems to be a belief that GET helps some and therefore is relevant. I think diagnosis is a huge issue.

I know of one child with quite acute OCD, which came to a head after his grandfather died.They were very close and in part he attached blame to himself for not being with his grandfather at the end ( he was on a school trip) He had a referral to CAMHS, and started making progress over the...

Perhaps the Jill James and Yasko research should be considered - if detox pathways are compromised genetically, and these genes are expressed, then you would no doubt have gut impacts which would affect bacterial presentation and proliferation. Another cause v correlation issue ?

Again, this

Yes. And children may be motivated in different ways, depending on their relationship with the authority figure.

Re MUS

This

Or given the way LP works, would the LP cohort not be " feeling better" and have the need to remain engaged. Is that not how brainwashing works?

When is waiting list a control ? I thought the validity of this approach had been debunked GIGO

Are Afme no longer forum members - tagging doesn't t seem to work

My daughter has to " do something" when listening , she can't simply listen. ( Ironically she says it doesn't go in if she just listens)