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  1. J

    History of NICE decision to set up 2020 Committee

    That's great. Thanks, Andy. I've passed that on nd that seems to answer his question.
  2. J

    History of NICE decision to set up 2020 Committee

    TC is just checking a fact about the timeline for the guidelines. Any quick help appreciated. Links if possible to support. Why was there a review started in 2017? Am I right in saying 2007 committee reported. Same committee reviewed in 2010 said all is well. Patients called for new review...
  3. J

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    This tweet by Phil Hammond needs to be seen alongside the one by Sharpe and the admission of harm by Goddard. For over 30 years we have been told that GET is not exercise, that it succeeds through incremental increases and that there is no evidence of harm. They're clueless. It's a complete...
  4. J

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not sure if this has been pasted elsewhere, but letter in The Times (London) this morning:
  5. J

    Request for patients' stories harmed by GET

    It seems to have been deleted.
  6. J

    Clinician Conceptualization of the Benefits of Treatments for Individual Patients, 2021, Morgan, Pineles et al

    https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2782140
  7. J

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This may help answer those questions. https://www.coyneoftherealm.com/2017/06/07/nice-guidelines-are-discrepant-with-meta-analyses-and-based-on-political-considerations-an-exchange/
  8. J

    man with Axis Hypersomnia

    Indian man sleeps 300 days a year. https://www.indiatoday.in/india/story/rajasthan-rare-disorder-axis-hypersomnia-kumbhkarna-1829228-2021-07-17 From (£) https://www.thetimes.co.uk/article/rip-van-winkle-of-india-sleeps-for-three-weeks-out-of-four-qg89w9v9l
  9. J

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    From the article: Is it possible to measure accurately how my brain anticipates and monitors what I do?
  10. J

    ME Epidemiology - prevalence and peak ages of onset

    That's interesting, because going back to the 80s and early 90s, 100,000 was the figure generally used.
  11. J

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    I did a brief search on Newman. She has done previous work for the BMJ. She's also written articles for 'The Bureau of Investigative Journalism' on FII. EG: https://www.thebureauinvestigates.com/stories/2018-04-18/treating-fii-the-gosh-approach...
  12. J

    Stuart Ritchie, science journalist, articles on science fraud and open science

    How the Lancet lost our trust Stuart Ritchie The Spectator (UK) 26/06/2021 A few of us have tried to get Ritchie interested in the PACE trial, but he has previously refused. But since it now seems to support his argument, he does cautiously mention it...
  13. J

    Preprint: The Rise And Fall Of The Wessely School, 2021, Marks

    Someone who helped him has already mentioned this.
  14. J

    PACE Trial application to MRC for funding in 2002

    All the material I obtained from that FOIA request is now available here. https://www.mediafire.com/folder/d5tryetu1l2mn/MRC
  15. J

    Can anyone help finding the MRC application for the PACE Trial

    Tom, one file is 20MB, so I have done an upload. Everything I got from that FOI is here. https://www.mediafire.com/folder/d5tryetu1l2mn/MRC
  16. J

    Can anyone help finding the MRC application for the PACE Trial

    Pretty sure I got that with an FOI. I'll check files and get back to you.
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