Search results

I agree that there seems to be a problem with the MEA processes used to allocate money for research. Certainly, there is a problem with the transparency of its processes, and there have been some problems with its decision-making on this front lately. There may be a good case for a...

Ha, perhaps if the MEA tells Riley he's served long enough he will have a ready-made new charity to lead... To save others clicking through, the Myalgic Encephalopathy Society seems to be just a shell company to hold the name and domain name, with no financial activity (sorry, crosspost with...

The thesis is in English and (as far as I have got) is readable. There's the odd thing that seems questionable e.g.

Fig 2a individual serum IgG responses as Mean Fluorescence Intensity (MFI) corrected to the MFI of scrambled peptide I'm not seeing any differences there that are very exciting. There might be a difference for TSPYL5_133, for some of the patients.

Participants from the Charité Fatigue Centre, Berlin. The research team includes Carmen Scheibenbogen and Nuno Sepúlveda. The introduction was full of statements that I think are arguable. I keep wanting autoantibodies to be the cause of ME/CFS, but until now, I think the evidence has not...

Yes, people with Long Covid can work out strategies for dealing with their symptoms, including constraints on cognition and activity in general. But, a good occupational therapist who is informed either by their own experience or the experience of others, as well as listening to the individual...

I think that is pretty much all they are saying, along with promoting an awareness that these sorts of cognitive impairments can occur in Long Covid and of some of the specific manifestations e.g. that the impairment fluctuates and that some people report being able to do thinking work for...

Going by the 'Clinical Pearls' summary: the recommendations seem sensible to me. Acknowledgement to the patient and their family that cognitive impairment is often reported by people with the Long Covid constellation of symptoms, and that there may be some cognitive impairment, rather than...

I think it is worth noting that the CSI is biased to diagnosing women as having central sensitisation. There are two questions that relate to urinary tract infections: and one on pelvic pain Women are more likely than men to experience bladder infections, endometriosis and period pain - all...

Essentially yes, although the details are slightly different. Substantial effort went in to selecting GPs who supported the idea of central sensitisation and who had experience in explaining it to patients. It was the GPs who selected willing patients and who decided which one (or more) of...

Yes. Although the differences in BMI, smoking and activity levels between the fibromyalgia and sex and age matched controls aren't massive. And the differences in the incidences of infections are surprisingly large. I agree, it is an interesting report.

A discussion about the prevalence of various sorts of involuntary movements has been merged into an existing Symptom Discussion thread: Involuntary movements: Seizures, tremors, tics, twitches, myoclonus

When a test was negative: GP 13: “Not that I think it will make me doubt the diagnosis, but I did have a story in mind and then I couldn’t explain it that way anymore. So yes, then I had to stop and think what to say instead.” :rofl: What an utter embarrassment - this is modern medicine.

Yes, the survey is circular nonsense. 1."Central sensitisation" (having symptoms without any identifiable pathology) has this set of symptoms with no identifiable medical cause, 2. You have these symptoms and I haven't identified any medical cause, 3. Therefore you have central...

Another account attributing benefit to enoxaparin treatment is now at [Case Report] Treatment of Long Covid with Enoxaparin, 2025, Wright, Kell, Pretorius, Putrino (some posts have been moved there)

Yes, although it's easy for people to say the perception of fatigue of the healthy males after some bicep curls or whatever is quite different to the perception of fatigue of the people with ME/CFS. And, to some extent, they will be right. Definitely this. Contexts will vary things so much...

I think the way people like O'Sullivan get around the issue of patient confidentiality is that they 'fictionalise' their examples. I think they usually say that their examples are amalgams of real patients. Which is all very well, in terms of concealing patient identities, but it also means...

How about The ME/CFS Peer Review, or just 'The Peer Review' (given that you often cover topics beyond ME/CFS) There are two of you, a pair. The name sounds authoritative, while not claiming to be above those whose work you are scrutinising. 'To peer' is to look hard; the UK Peers in the House...

I like "ME/CFS Skeptic", but perhaps that is partly because I knew what to expect when I first read one of the blogs. I think ME/CFS Science is too bland and forgettable. It will be hopeless to search on. I like ME/CFS Scrutiniser, with or without a 'k'. Others have mentioned words to do...

GNAI2 googled snippets