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An interesting study. Possibly the study was underpowered to identify any impact of hormone use (specifically female hormones). Note the lack of statistical significance for sex assigned at birth - although again the numbers of people with Long Covid maybe wasn't big enough. There was a trend...

Thank you so much @butter. I think S4ME could be very effective at fundraising, and I too would love to see the combined wisdom of the forum being applied to the choice of ME/CFS research projects. However, the recent kerfuffle in the MEA underscores how important it is that there are good...

What if we had a thread for members to nominate resources they would like to have available, whether that is a guide on 'Pacing', information on 'What is ME/CFS?', even short pieces on 'Are ME/CFS and Long Covid related?', 'Severity levels in ME/CFS'; 'What [dieticians/occupational...

The forum committee, both as a committee and as individuals, has suggested to researchers that we could provide private forums and nominate suitable members to consult with. We haven't had any takers so far. But, I haven't given up hope that we might yet be able to do something like that...

Some of us in the S4ME committee have been thinking about creating a website with the forum embedded in it, with pages for resources, things like exemplar patient information and links to good quality advocacy materials. The idea would be that this information, (updated as necessary, translated...

An off-topic discussion has been moved to a new thread: How can we improve the quality of ME/CFS research and clinical care?

I have finally read the paper and I want to have one more go at defending the authors. There is good intent here and also a lot of good content. I think it is a helpful document. I know @Sean that you weren't saying this paper is infantilising and insulting, but instead that...

Comparison of Clinical and Pathophysiological Characteristics of ME/CFS and Chronic Fatigue Associated with Post-COVID-19 Syndrome, 2024, RIABKOVA This thesis gives interesting information on the history of ME/CFS in Russia as well as the current situation there for people with ME/CFS and...

Filling another gap in our regional coverage. This thread is for news about ME/CFS and related illnesses and matters in Russia.

The incidence of fatigue during the acute illness is very variable, as is the incidence of PIF. Methods of assessment and timing of assessment undoubtedly affects the numbers a lot. Figure 3 Forest plot of the global prevalence of post-infectious fatigue among dengue patients (n = 9). Events...

Fatigue - defined here as Post-infection fatigue (PIF) - defined here as Prevalence and risk factors See my previous post - the nine studies investigating the prevalence of post-infection fatigue had a low mean age (29.5 years) DHF - Dengue hemorrhagic fever, so, a severe acute illness...

It's certainly a very odd route for a charity to take. For sure, someone will have copies of the minutes and related material explaining what was being voted on. The information will come to light. Given that, surely it is better for the MEA to be seen as transparent and provide the material...

"The main provisions for defence 1. The prevalence of ME/CFS, according to its diagnostic criteria, among patients with chronic fatigue associated with PCS is 45.7%, necessitating increased awareness among physicians about ME/CFS, modern approaches to its diagnosis and therapy. 2. Patients...

The findings from these studies have certainly been widely shared and may well have been influential for the care of people with ME/CFS in Russia I really hope the studies were done well.

Research objectives 1. To study the prevalence of ME/CFS according to its diagnostic criteria among patients with chronic fatigue associated with PCS. 2. To determine the signs of dysautonomia based on the analysis of heart rate variability (HRV), blood pressure variability (BPV), and...

There have been a number of reports of various interventions in the nasal cavity being useful for ME/CFS and LC e.g. the most recent one. Novel Oro-Nasal Drainage for Long COVID: Proposed Mechanisms – Case Report, 2024, Lorenz et al I've not really taken them seriously, especially the ones that...

Fantastic, thank you HYTY

Yeah, people in many places, the US. It is surprising. Also, my 92 year old aunt. I even bought her an electric kettle and still she doesn't use it, but continues to burn out the saucepans that she heats her water in. (And, it turns out that I was doing what we don't want OTs to do, leaping in...