Yes, but it works against us if the holes in the paper are big enough to drive a truck through. If a patient takes this paper to their GP and says 'look, I don't have FND! because I get dizziness and Table 1 says that people with FND don't', or 'look, I don't have FND! because I have Raynaud's'...
You make a lot of good points Trish, and yes, it looks as though the authors have put a lot of time into the paper, but I agree with Jonathan that it is unfortunately counter-productive. I don't think the paper should be used in advocacy.
But that is essentially what the authors say. And, as...
The fact that ME/CFS (and Long Covid) looks different to functional seizures and functional motor disorders doesn't prove that ME/CFS (and Long Covid) aren't also functional disorders. Functional seizures and functional motor disorders present very differently from each other too. The...
We have moved some posts directly relevant to managing feeding problems and Jonathan's Qeios article here:
Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)
We have moved some posts more directly...
I'm no expert of course, but I think the process of digestion which is noted above to include some molecule synthesis could in fact take more than some minutes. If you think about the post-Christmas dinner effect, people are not leaping about feeling full of energy immediately after consuming a...
Yes, absolutely this.
But, I'm not sure that this needs to be true. There could be mechanisms that stop oxygen depletion becoming so severe that tissue dies. It looks as though it is possible to have significant intestinal ischaemia for 12 hours without significant tissue damage.
The pain and...
https://espen.org/documents/A174-02PaedPNGuidel_ESPGHANESPENPNGuidelines2Energy.pdf
Certainly it isn't simple, but it looks as though digestion and associated processes is a significant consumption of energy. The suggestion here is that it is 10%, although it isn't clear if that is for both a...
'Intolerability of eating' as an extension of intolerance of exertion and sensory stimuli doesn't really make sense to me.
I would get a pain in my gut after eating sometimes, especially in the evening. As Michelle reported, for me the pain was accompanied by a very clear need to lie down...
Table 2: Of the 85 students with one or more Long covid symptoms:
62% of parents agreed that the child's studying had been affected
(54/85) 64% said that the child had been able to return to usual activities of daily life within a month of the illness
(12/85) 14% said the the child had been...
School-based sample. It's a good idea, a prospective sample. There's just the concern that the parents of a student who drops out of school due to Long Covid may not be receiving the online communication from the school.
The rate of response was pretty good.
Rates of PEM weren't measured...
Guardian article
Comments on the Guardian article are now closed, but there are 69 comments. I didn't read them all, but there are excellent comments there. Thanks to everyone who made the effort to set the record straight.
Miller has been beating that particular drum for a long time. That...
That's an important reference. I meant to read it all, but have so far only got to these:
These excerpts suggest that a single assessment of capacity to swallow is not sufficient when working out a suitable approach to ensuring nutrition. And, surely, sustained weight loss must be the most...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.