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Thanks for posting it. I think it's an interesting example of the mess the chronic pain literature is in. There's a bit of waffle in there about how chronic pain is a disease, when of course it's a symptom, one that can have a range of causes. Calling chronic pain a disease makes as much...

@Elaenor, why did you post this paper? Has it been cited somewhere? Female mean perception of pain at their individual heat pain threshold = 23.7 Male mean perception of pain at their individual heat pain threshold =37.7 This is on a 0-100 scale, with 100 being worst pain imaginable.

Yeah, there is nothing about the temperatures of the heat pain thresholds! For what it is worth, the females did indeed rate the pain at their individualised HPT as lower. It's quite possible that the women had, on average a lower Heat Pain Threshold because they were not culturally primed to...

This study is not what I thought it was. They first establish a heat pain threshold (HPT) for each participant. Then: VAS is visual analogue scale Table 1 gives results for how the participants rated the pain at their identified heat pain threshold. The whole study is about the VAS, the...

Small sample size and any study of this type is going to be confounded by culture e.g. 'it's manly to ignore pain'.

We are a bit constrained with moderation staff right now, but if someone can find the relevant threads and send me them in a conversation message, I'll add the links. Edit - adding some

That's a low proportion the people with Long Covid. I wonder if the requirement to meet the three criteria and the interpretations of each required symptom was overly demanding? The female percentage is a bit unusual too. Possibly, all it would take for someone to not get an ME/CFS diagnosis...

Here's the website for the process. https://www.nhmrc.gov.au/health-advice/me-cfs And the timeline Planning and Governance - September 2024 to March 2025 6 months Scoping and consultation - January to June 2025 6 months Evidence review - June 2025 to June 2026 12 months Development of...

I wonder how many sessions they will be doing: That regimen sounds pretty tiring. They are using the standard woo recipe - unblinded treatment (here is supposedly a drug treatment arm, but patients are expected to just apply the medicines that are already using), recruitment selecting for...

I agree that it was fiction with respect to BACME, with the implication that they have been battling heroically in an underfunded NHS to try to care for people with ME/CFS. However, I don't think it was damaging. If BACME have to front up and say 'no, it's not psychological' and 'we need...

That was a very good piece. The interviewer is sympathetic and knowledgeable about ME/CFS. I endorse @bobbler's thanks to @Chris Ponting, and the concern about the BACME input. Although Anna Gregorowski was saying that ME/CFS is not psychological, she was suggesting that the problem is just...

Thanks very much for this, @Flicker_Beat.

Welcome to the forum @Flicker_Beat. Thanks very much for telling us about the consultative service.

I think they are suggesting that peptides are offered up in a mechanism that effectively says 'do not attack' in the meninges, protecting the body from attack by the immune system. But, when there is an infection, this mechanism doesn't operate well, increasing the risk of autoreactivity. They...

Some discussion of monoclonal antibodies by Nancy Klimas here: News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

See also Remission of severe forms of Long Covid following monoclonal antibody (MCA) infusions: A report of signal index cases..., 2024, Scheppke, Klimas et al

Copied from @Dakota's post on the US news thread: 2/7/24, 'Are Monoclonal Antibodies a Possible Treatment for Long COVID? ft Prof Nancy Kilmas' "..it's an unusual study because it's funded by the State of Florida, which is very odd. They're not usually in the clinical trials business..they...

Yeah, the idea that you could somehow get together people who are convinced of various, often conflicting things: mast cell activation, hEDS, microclots, psychosomaticism, along with government people who mostly don't know what ME/CFS is and don't particularly care, and produce some research...