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  1. Hutan

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    https://www.nature.com/articles/s41591-024-03433-5 The updated Declaration of Helsinki empowers ethics committees to require community engagement and equitable partnerships 1964 saw the US Surgeon General report that smoking is a health hazard, the UK abolish the death penalty for murder, and...
  2. Hutan

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    We've had a query about whether the original link to the petition still works, now that the title has been changed (with the addition of '2024'). It does still work - here's the link again: Petition link: https://chng.it/zTZ7vX9Czd
  3. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    I don't think we have listed MERespite on our list of ME/CFS organisations yet. Good to hear more about them @hibsicuswahine. I'll add them to our list.
  4. Hutan

    Personality and neuropsychiatric symptoms in individuals diagnosed with long COVID, 2024, Avinir et al.

    Incorporating psychological interventions into treatment plans to alleviate distress associated with cognitive decline is a reasonable thing to do, so long as there is a need and the patient wants the interventions. Dealing with persistent symptoms and all the life changes associated with them...
  5. Hutan

    News from China

    Neurasthenia in CCMD (Chinese Classification of Mental Disorders), 2024, Maniscalco 'somatic depression'
  6. Hutan

    News from China

    Surprisingly, we don't have a thread for news from China yet
  7. Hutan

    Best US Charities to Donate to?

    I think my pick of the US national organisations right now would be Solve ME/CFS for the reasons you say, despite my considerable concerns about some of the research that they have funded. Emily and the team there supported our Cochrane campaign, indicating that they understand those issues and...
  8. Hutan

    Preprint Adverse effects of CoenzymeQ10 in the treatment of patients with chronic fatigue syndrome/myalgic encephalomyelitis (ME/CFS), 2024, Olsson

    Here's our CoQ10 discussion thread CoQ10 - Coenzyme Q10 You can find more studies of CoQ10 by clicking on the tag top left. e.g. this one of post-Covid symptoms, click on the arrow in the quote title to follow the link
  9. Hutan

    Preprint Adverse effects of CoenzymeQ10 in the treatment of patients with chronic fatigue syndrome/myalgic encephalomyelitis (ME/CFS), 2024, Olsson

    No placebo control, so it doesn't tell us much with any certainty. It's an observational study, which is okay, but the authors certainly should not be making statements like this: There is no way that they can know that the various mostly common ailments reported had anything to do with CoQ10.
  10. Hutan

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I think it's easy to make an argument that the environment that government and health authorities create does affect how easy or how impossible it is for people to comply with the recommendations. People can be being told that they need to eat healthier and exercise more, while sugary...
  11. Hutan

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Yeah. I've had this standard reply to my email this morning from a Cochrane officer who I know personally:
  12. Hutan

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Just noting this from the 2019 (and of course the 2024) version So, most recent included study was in 2011.
  13. Hutan

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    We have amended the title of this thread, and added a link in the first post of the thread to the beginning of the discussion about the 2024 relabelling
  14. Hutan

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    On Kennedy, from the article linked in the above post
  15. Hutan

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Some discussion of this latest turn here also: Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019
  16. Hutan

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Just noting the timing of this announcement, days before Christmas. I doubt that was chance. It's like how governments drop bad news on a Friday, knowing that the journalists won't be working for two days, and hoping that by Monday everyone's attention will be on the next thing.
  17. Hutan

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    That's an excellent comment. I would go further and suggest that many of the criticisms apply more widely to literature on all sorts of behavioural interventions for all sorts of medical conditions. A careful consideration by Cochrane of the risk of bias in unblinded trials of interventions...
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