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Via Peter Tatchell's twitter (linked above) I got to this link : https://www.whatdotheyknow.com/request/part_funding_of_the_pace_trial_b A quote from the DWP on that link : Whenever I read any kind of comment like this it always make me think of the Auchwitz entrance with its motto "Arbeit...

The only people who could say such a thing are those who've never suffered long-term untreated or under-treated pain. I suspect that the death rate from suicide will sky-rocket. What use is a doctor who can't or won't help with pain?

I've never heard of this man. He sounds like a mysogynist. Why do so many of them decide to go into medicine? Is this him? https://en.wikipedia.org/wiki/Stephen_Straus

I had "good manners" drummed into me when I was a child, as well as the idea that I mustn't show I was in pain or in distress because I had to be "stoical". It is like a straitjacket on how I interact with people in all sorts of situations. Looking back I'm not surprised that I was diagnosed...

Who makes up these myths? Unbelievable!

I hadn't realised that Merryn's death occurred so long ago. Perhaps it is appearing in the papers now because the parents have gone public?

I suffered from severe depression (for very good reasons) in my teens. I was referred to someone - a psychiatrist who just saw me once - and I was later told by my GP that I had been diagnosed with "normal teenage angst".

Link : http://metro.co.uk/2018/04/02/you-smiled-at-me-so-youre-not-depressed-whats-the-most-patronising-thing-your-doctor-has-ever-said-to-you-about-your-mental-health-7418916/ A couple of anecdotes from the article : There are lots more anecdotes in the article: Link ...

I just found a short version of this story on a New Zealand news site : http://www.newshub.co.nz/home/health/2018/04/inquest-into-british-girl-s-death-after-rare-disease-takes-her-life.html It mentions that an inquest will be held in May.

The same article has appeared in the Mirror : https://www.mirror.co.uk/news/uk-news/young-woman-dies-after-illness-12288945 There have been five comments on the article (so far). Rest In Peace Merryn.

24% : $18,290

[My emphasis] The bit in bold strikes me as being bizarre. Considering how many insults have been flung at people with ME/CFS, suggesting that they are lazy, attention-seekers, hypochondriacs, don't want to work, want to live off benefits, and are aggressive and dangerous activists who are as...

I have just read this quote from the article : My perception of current news : I remember years ago (in the 1990s and before?) that Greenpeace and Friends of the Earth would often be quoted in articles or would appear in interviews on the news. But they appear to have vanished off the face of...

One thing that 5-HTP does is it raises cortisol. I don't know what the mechanism is that makes that happen. I imagine that would cause adverse effects in quite a lot of people. I have very occasionally taken more than 50mg 5-HTP, and my reaction is to get the jitters and internal shakes, and...

The diagram I have found helpful when investigating the pathways for tryptophan, serotonin and melatonin is this one : https://en.wikipedia.org/wiki/Tryptophan#/media/File:Tryptophan_metabolism.svg Going down the left hand side of the diagram, Tryptophan --> 5-HTP --> serotonin -->...

@Agapanthus @Invisible Woman My mother, who was hypothyroid, was treated for osteoporosis, including with those drugs that can cause necrosis of the jaw. Unfortunately she got that side effect, and almost all her teeth fell out.

The subject of generics and non-generics puzzles me too. Imagine Pharma Company A invents Drug Z. While A makes Z under patent, Z is not a generic. When the patent runs out, and Pharma Companies B, C and D start making Z then B, C, and D are making a generic version. Under those circumstances I...

If I click on your first link I only see the above 2 tweets. If I click on your second link I get asked to sign up or log in. I can't bypass that request in any way.

@Keela Too @Art Vandelay Very weird... I always have problems with Twitter on Firefox. I can see more when I use Chrome. But I still can't find a way to see all 92 tweets. I can see this thread : which contains only one post by cfs_research plus some posts by other people responding to it...

1) I'm surprised that Twitter handle wasn't snapped up years ago. 2) The account statistics suggest 92 tweets have been tweeted by that account, but I can only see two. :( (I don't have an account.)