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There must be a way around this. I do believe Enterovirus is causative for many.

Thank you, still, I am quite active online, you are not hearing enough from it if you ask me. (of course nobody does :-) )

This should be reposted time and time again! It is completely above me why they after what, one year, still have not enough patients for this study, that is the dream for every moderate patient in my view to figure out what is going on! Please repost this everywhere, also OMF and ME Action...

I thought this might be interesting:

Thank you. I am not sure you alluding to me when talking about these people. It would be a fair statement when it comes to „advanced neurology“ but not so fair when it comes to anatomy in my case. In any case, it would be interesting to know if you see a potential problem in the cord being...

The circus and bendy people made me wonder too, I do believe this could be different from what I am talking though, not sure. These people are not required per se to bring their spine in a position that is automatically unphysiological, that for sure is a misconception. Also I do not have any...

Well, how would you test for a hypermobility of the ligamentous structures of the spine that allows „unphysiological“ movement as in so far that it „stretches“ the cord? The little understanding of biomechanics that I have makes me wonder whether seemingly little hypermobilities in between...

Hello Dr. Edwards, @Jonathan Edwards I thought you maybe want to comment on this? Thank you. Stretch-associated Injury in Cervical Spondylotic Myelopathy: New Concept and Review Fraser C. Henderson, M.D.1 Department of Neurosurgery, Georgetown University, Washington, District of Columbia...

I do not believe that the similarities between me/cfs and post polio syndrome are arbitrary.

Very interesting, thank you! What is the actual mechanism in ballet dancers when they do become more flexible due to stretching? I will add this study, they are partly geneticists, if they are „the real thing“ is absolutely not for me to decide, after all, I am a baker...

Thank you! Dr. Edwards, you mentioned that ligaments more or less (I am paraphrasing here) either snap or are the way they are predestined by your genetics and that you doubt that that an inflammatory process could increase the laxity of this type of tissue. I have to say I that my own...

thank you! Was not aware of this paper, unfortunately have no access, can someone post the text here maybe?

I am (still) trying to come back in a few more days with a longer post as of why I think that many syndromes and disease states are indistinguishable from each other and will probably (unfortunately) be for a long time and many of them are now diagnosed as ME/CFS. From my humble perspective...

Is there a link to Maureen Hansons talk?

Thank you for your answers, many of my questions do not seem to be answered, of course you do not have to answer them and I think maybe this exchange is the necessary seed for further discussions into this topic. Things are not as clear cut as presented here mostly, nor are they as presented on...

Thank you for your reply Dr. Edwards! I will come back with a reply when I feel a bit better, hopefully in the next days. To completely understand your stance please let me ask you the following: 1.) Do you still believe that EDS has no connection whatsoever to what is known as ME/CFS...

Very interesting thread! I have severe ME/CFS and EDS, being completely bedbound since 2017. I have a translational BAI of 6 mm, that is a measurement that has been recorded via uMRI before (!) I became bedridden. People seem to be quite adamant that uMRI is an unnecessary tool, I ask very...