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Thank you! PS: Quite often I find your 'summaries' very enlightening and helpful.

Thank you, are intramural data indicating whether low levels of catechols correlated with severity of ME patients? The potential overlap with synucleinopathies is interesting. There are researchers (Avik Roy?) thinking that a subgroup of ME patients might suffer from a synucleinopathy, as far...

So then Dr. Edwards, I guess, looking at all ths nonsense we/you could write a rebuttal now, what are your thoughts on that?

I think the HRV and heartrate issues are quite likey to be a real signal. Other people/teams have found this too and it's the main reason for why some of the pacing Apps are somewhat helpful for many patients.

There is I guess a qualitative difference between leaking and supplying.

I fail to understand how so many intelligent and well-versed people have thought, and to a degree still think we will get a fair shot at the NIH. I honestly don't say this to put people down, but it needs a real change in attitude towards this institute. The NIH put a person in charge of this...

Just to clarify, with 'at the bottom of the discussion' I meant that there is a deeper almost philosophial layer to the discussion. I was not talking about the discussion part of the paper. Bad coice of wording. Sorry!

no,no,no,… these blood vessels are simply not showing enough effort, but, it's not their fault,… they just can't help themselves,…

Thank you. I think what Walitt is trying to do is to find a new spin on BPS, quite similar to what the new FND brigade is doing. At the very bottom of the discussion lingers the question and uncertainty of/around 'free will' (not really a question actually, cells behavior, and therefore our...

Thanks for sharing. First off, this is not my experience at all. There is no lack of willingness to act or exert in my experience of ME. I very simply can't exert energy without getting worse. Wouldn't an experience of lack of willingness be indicative of depression or asked differently what...

I think the thing that stands out to me the most is that there was not a single patient with POTS. Unless pwPOTS were conciously excluded, which would be hard to justify, this really makes no sense. Either some of these patients had POTS and it did not show up (can happen with TTT), they were...

Not your buddy. This has nothing to do with the patients, obviously. If these patients have Fukuda ME/CFS and no POTS, frankly they should not have been selected. And yes, I think US advocacies deliver subpar political advocacy work measured on outcome, that is no slight on any single person...

Biggest effing joke. I really don't think you could come up with such results unless you planned to do so. I am serious about this. It's just not possibe unless you select for it. With this pubication I have shifted from the 'NIH's behavior might be a bit fishy' to 'definitely in parts...

I actually didn't want to, for my very own sake, get into the Walitt effort bullshit, but the fact that this people seriously build up a hypotheses around patients not wanting to crash, hence might be a little more careful, is truly insane. It's beyond me how this can be published like this.

This paper is a complete joke and evidence for the NIH's semi-fraudulent behavior in regards to ME/CFS. If somebody would tell you to make an effort primarily to show effort, but, to not actually find answers, that is approx. what you would get. The fact that Fukuda criteria were used is simply...

I want to say that I do know that you are a specialist in that area, I have talked to other specialists, though. (I am not even close to being a specialist myself.) They told me that Rituximab is not the same as CAR-T in terms of b-cells, as there might be a difference of penetration in terms of...

Sure! I am not against having better data. However, a good way to obtain the best/correct epidemiological data is to work with the CDC numbers, aiming to increase funding. This funding can be used, among other things, to support epidemiological studies. Additionally, I have doubts that we...

Both can be true, the prevalence numbers are for whatever reason too high and the new prevalence numbers can be used effectively by advocacy to push for higher funding of ME/CFS. Of course, one can also 'try to get to the bottom of this' but it's most likely a waste of energy. There will be no...

Certainly not a top tier journal.

Exactly the same thing going on. 100% the same thing. I think it might not only be that ME sits on top of these symptoms, it might actually be the disease in its early stages.