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The study just claims that CFS is a central sensitization phenomenon with absolutely no evidence that’s the case. They cite to a paper about musculoskeletal pain in central sensitization as the reference. Doesn’t anybody police this space? Was this peer reviewed? I would honestly like to write...

An ME patient bringing any sort of educational literature to a physician is likely, in my estimation, to only confirm that physician’s view regarding ME patients: neurosis, hypochondriasis, heartsink, etc

Lenny is clueless. I interpret his ramblings as a nod to GET/CBT being effective. It’s shameless overconfidence

How do they speak with such certitude in deeming ME a functional disorder? Does anyone ever question this during a review process? Does anyone ever contact the authors to ask them what empirical evidence allows them to make such a designation?

Here’s a piece from the same Lenny Calabrese. I think you’ll find a lot of the tropes noxious, devoid of empirical support, and demented. Learned helplessness makes an appearance! How Calabrese is now being consulted as an expert is bewildering and disturbing. I hope everyone gives this link a...

I grieve for this poor child, and the inhumane, ghoulish behavior inflicted upon her. This is a snapshot of medicine, of the system that allows figures we know well to thrive. Gaffney, Wessely, Carson, etc are a symptom, rather than a cause, of such a contemptuous business.

Time is a flat circle. GET is now pacing, and don’t forget to throw in some acupuncture. The evidentiary double standard is so blatant, and the people charged with enforcing rigorous compliance eat this nonsense up

He would then be offering a service in direct contravention to NICE guidelines, and he would be hitching his wagon to what most reasonable observers would liken to a cult. I realize the LP is given more credence in the UK medical establishment, which is lamentable. In the US, I remain convinced...

Nobody feels “better,” they merely feel less miserable. Also, what does Garner offer in the form of citations for this sweeping generalization? After my appendix ruptured many years before developing ME, I went to the hospital, had it excised, and never discussed it again. I don’t know that...

Does anyone have contacts at the American charities? I feel like they could craft a response/organize something meaningful?

This is just terribly disheartening. I hope American charities are informed of this and challenge any problematic claims that might arise out of the lecture.

I probably won’t live to see the full ramifications of Natalie Shure’s incursion into this space, as I’m on the older side. I would conjecture that her shadow will loom over ME sufferers for decades to come. It’s a harrowing prospect for younger patients

I can essentially guess who the one respondent popping up on every comment is without reading said comments. Is it perhaps a like minded physical therapist who takes arrogance into uncharted waters?

This is always the platitude BPS clinicians fall back on. Failure to improve is merely a result of the patient’s desire to maintain the sick role. The treatment never fails, only the patient, because he doesn’t want to succeed. This is religious fundamentalism, not science.

This is effectively the Shure/Gaffney modus. If only the world could see our erudition and follow our recommendations, what a utopia it would be.

We remain shocked that this clinical entity we don’t understand looks like this construct we think it is. This is the addled logic these people not only endorse, but fervently celebrate.

I believe this position is with Virginia Commonwealth University. The University of Virginia is located in Charlottesville and is a far superior academic institution.

When a random Twitter user named “Rodrigue Biscuit” offers a more artful summary of the issues with BPS research than Shure could ever concoct, it speaks to the disturbing state of affairs here

This reply communicates an unequivocal truth. Shure is intransigent regarding her position, and will leverage any opportunity to advance this framework. Her access to various platforms and penchant for publication makes her an adversary we will undoubtedly contend with for years to come. She’s...

This checks all the boxes of shameful ignorance and arrogance. I also resent the notion that psychosomatic researchers are being “deprived” of anything. They’ve completely dominated the narrative and destroyed our existences for decades. They’ve rendered us pariahs, but *they* are the ones being...