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  1. mango

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    "Swedish court finds Italian star surgeon guilty of ‘causing bodily harm’ A court in Sweden has found the scandal-hit Italian surgeon Paolo Macchiarini guilty of a serious crime causing bodily harm for one of three experimental operations implanting synthetic windpipes in patients."...
  2. mango

    Neurotoxic amyloidogenic peptides in the proteome of SARS-COV2: potential implications for neurological symptoms in COVID-19, 2022, Charnley et al

    Australian researchers find parallels between Alzheimer’s and long-COVID ‘brain fog’ https://www.smh.com.au/national/australian-researchers-find-parallels-between-alzheimer-s-and-long-covid-brain-fog-20220614-p5atnp.html
  3. mango

    News from Scandinavia

    The motion states: The report (betänkandet) by the Social Affairs Committee (Socialutskottet) states: The decision states: The same report recommended that the Parliament should say 'no' to a centre of excellence for post-covid (motion 2021/22:3697 and motion 2021/22:3809), and the...
  4. mango

    News from Scandinavia

    Excellent, as always! Thank you so much :hug::thumbup:
  5. mango

    News from Scandinavia

    Repeatedly rejected benefit claims is such a massive problem for pwME in Sweden, I cannot stress this enough. So many of us, myself included, have had our lives completely destroyed by them, including severe permanent deterioration from having to over-exert ourselves by appealing to the...
  6. mango

    News from Scandinavia

    More news on Radio Sweden (2 minutes, in Swedish) Ny rapport: Oftare avslag för fibromyalgi och kroniskt trötthetssyndrom https://sverigesradio.se/artikel/ny-rapport-oftare-avslag-for-fibromyalgi-och-kroniskt-trotthetssyndrom
  7. mango

    News from Scandinavia

    The Swedish Social Insurance Agency (Försäkringskassan) has published a social insurance report on rejected sickness benefit claims (sjukpenning): Rejected sickness cash benefit claims – A register study of sickness insurance decisions on initial claims and claims after day 180 in the...
  8. mango

    Long Covid in the media and social media 2022

    The Swedish Covid Association has quote tweeted the thread, saying "Here are the answers to a lot you want to know about postcovid. @trishgreenhalgh is probably the doctor who has contributed most to the advancement of knowledge in Europe. Follow her." o_O
  9. mango

    News from Scandinavia

    Paywalled articles in a Swedish local paper: Diagnosen fick Anna, 33, att ge upp sina drömmar – nu har den största besannats https://www.falukuriren.se/2022-05-30/diagnosen-fick-anna-33-att-ge-upp-sina-drommar--nu-har-den-storsta-besannats Christina kämpar för sjukdomen som inte syns: ”Många...
  10. mango

    ME researcher Jonas Bergquist - interviews, talks

    From the News in Scandinavia thread (includes auto-translated quotes):
  11. mango

    News from Scandinavia

    Article in a Swedish local paper: Forskare: Postcovid och ME kan vara samma sjukdom https://unt.se/bli-prenumerant/artikel/rx5v28kj
  12. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    I forgot to add, another reason that pwME might wrongly have an ED diagnosis on paper is that many doctors know that the Swedish Social Insurance Agency very often denies the fact that ME can be very disabling and significantly affect a person's ability to work. If it says ED instead of ME on...
  13. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Those of you who aren't familiar with Gustav Nilsonne's work, I'd encourage you to have a look, especially at the meta-science side of things. I think you might be pleasantly surprised. https://twitter.com/GustavNilsonne "My research in meta-science concerns transparency, reproducibility and...
  14. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Lots of long haulers have probably gotten misdiagnosed with exhaustion disorder already. Lots of us pwME have been misdiagnosed with exhaustion disorder, especially in the first 6 months after onset. This is a well-known fact. One common reason is that doctors very often don't know enough about...
  15. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Short news article in a web magazine created by journalism students at Stockholm University, Sweden. Dags att utreda utmattningssyndrom https://sites.jmk.su.se/laget/dags-att-utreda-utmattningssyndrom/6180
  16. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Another opinion piece in the Swedish newspaper DN, by the authors of the research article. DN Debatt Repliker. ”Behandling av utmattade måste bygga på vad som hjälper” https://www.dn.se/debatt/behandling-av-utmattade-maste-bygga-pa-vad-som-hjalper/ ("Healthcare choice" = Vårdval Stockholm is...
  17. mango

    News from Scandinavia

    Paywalled article in a Swedish local paper: Maria, 43, lider av svåra sjukdomen: ”Som om någon satt dimmer på livet” https://www.smt.se/2022-05-23/maria-43-lider-av-svara-sjukdomen-som-om-nagon-satt-dimmer-pa-livet
  18. mango

    News from Scandinavia

    Paywalled articles in a Swedish local paper: Fredrik älskar Cecilia – men hatar hennes sjukdom https://unt.se/bli-prenumerant/artikel/lwgvgo7r "Sjukvården har gjort ME-patienter sjukare" https://unt.se/bli-prenumerant/artikel/r42xq88l
  19. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    There's one more thing I'd like to add. When Bertilson was asked about how many people there are with ME [in Sweden], he replied: "What we can say based on research is that there are at least as many as there are people with rheumatoid arthritis, which is between 50,000 and 100,000 but it's...
  20. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Can you please explain what you mean, expand on this? Are you implying that the Bragée research has been silenced by someone, and if so by whom? How? As far as I know, nobody has tried to "warn off" or "take down" the Bragée clinic's research. The Bragées are actually known to be the kind of...
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