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  1. mango

    When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis, 2022, Bergquist et al

    When a 17-Year-Old Girl Is Diagnosed with Myalgic Encephalomyelitis: A Case Study from the Swedish Health Care System—A Parent Perspective Eva Bojner Horwitz, Jonas Axelsson, Olli Polo, Leif Widebert, Töres Theorell, Anabelle Paulino, David Ullman, Jonas Bergquist Abstract This case study...
  2. mango

    Long Covid in the media and social media 2022

    Sympathetic article in a Swedish newspaper about the fact that long covid clinics in Sweden are being closed down despite long waiting lists, and how disabling long covid can be, with severe and strange symptoms. Sara lider fortfarande av postcovid: ”Inget i kroppen fungerar som förut”...
  3. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Ooh, did you? :) Do let me know what you think, when you've had a chance to wear them for a while. I turned the floppy part of the silicone thing "inside out", which made it easier to aim and push it over the tube. One side first, and then stretch it a bit to go over the rest of the tube?
  4. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I haven't tried them with engine noise, will let you know if I do.
  5. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I've tried the Loop Experience Pro with the mute add-on now, too. I was able to listen to music without getting the painful "blown speaker" sound in my ears, and the music sounded great :) Felt amazing to be able to enjoy music, if only for a few moments! :) I'd say the difference between...
  6. mango

    News from Scandinavia

    Swedish influencer Vanja Wikström (37.7K followers) announces on Instagram that her husband will be starting DNRS, in an attempt to treat his ME... She will be blogging about his "journey". :grumpy:
  7. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Sorry I can't, because I don't use foam-type earplugs. Compared to my all-time favourite reusable earplugs Alpine SleepSoft (average noise reduction of 25 dB) and Alpine SleepDeep (27 dB), the Loop Quiet are very close in effectiveness (27 dB).
  8. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I've been trying a new brand of reusable earplugs lately: https://www.loopearplugs.com/ They are really nice :) Loop Quiet is my favourite, they are super comfortable and effective. Very soft and light, easy to put in, they stay in place really well, and they come in several different sizes...
  9. mango

    News from Scandinavia

    Opinon piece in the journal of the Swedish Medical Association, by prof Jonas Bergquist and others. Postinfektiösa tillstånd kräver kunskapsstyrning https://lakartidningen.se/opinion/debatt/2022/09/postinfektiosa-tillstand-kraver-kunskapsstyrning/
  10. mango

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    Some bragging by Dr Bragée on Facebook last week, about their short waiting lists: https://www.facebook.com/brageerehab/posts/pfbid02jontLbLAbwCCiZhiWjejSJSca4XNZrwbmMjS5Hovxf34WLDSeR75EhvuUoRRB4W5l To me it leaves a bad taste in my mouth -- especially when contrasting what he is saying with...
  11. mango

    News from Scandinavia

    (Not a recommendation, just passing on the link.) New private ME/CFS and fibromyalgia clinic in Ängelholm, Sweden. "Dr Ninarika." http://www.drninarika.com/ According to the info on her website, she has ME/CFS herself, is a doctor and a cattle farmer, and her view is that ME/CFS is an...
  12. mango

    News from Scandinavia

    (Not about ME specifically.) A Swedish news article about violence against women with disabilities. MFD: Det dolda våldet behöver synliggöras https://sverigesradio.se/artikel/mfd-det-dolda-valdet-behover-synliggoras
  13. mango

    Long Covid in the media and social media 2022

    Press release from the Swedish Covid Association: "Five out of eight parliamentary parties: a national knowledge centre for post-covid is needed" Fem av åtta riksdagspartier: Ett nationellt kunskapscentrum för postcovid behövs...
  14. mango

    Long Covid in the media and social media 2022

    In a Swedish local paper: Nästan bara kvinnor på postcovid-doktorns lista https://www.mitti.se/nyheter/nastan-bara-kvinnor-pa-postcovid-doktorns-lista/repvhr!s6J8cgq08AAVBP82QRBLdA/
  15. mango

    Long Covid in the media and social media 2022

    Long covid is a (very small) part of the current election campaign in Sweden. Here are four items published by the public service radio company Sveriges Radio yesterday: Julia fick postcovid – slussades runt i vården https://sverigesradio.se/story/julia-slussades-runt-i-varden
  16. mango

    Long Covid in the media and social media 2022

    News article about a Swedish long covid study: Forskare föreslår: Testa alla med symptom efter covid-19 https://www.svt.se/nyheter/lokalt/ost/forskare-foreslar-testa-alla-med-symptom-efter-covid-19
  17. mango

    Long Covid in the media and social media 2022

    More about post covid on the news in Sweden: Linda, 34: ”Hela livet har förändrats” https://www.svt.se/nyheter/lokalt/ost/hela-livet-har-forandrats
  18. mango

    Long Covid in the media and social media 2022

    News article about the Swedish Covid Association's recent survey :thumbup: Enkätundersökning: Var fjärde med postcovid måste sluta jobba https://www.svt.se/nyheter/lokalt/ost/enkatundersokning-var-fjarde-med-postcovid-maste-sluta-jobba
  19. mango

    Long Covid in the media and social media 2022

    SBU (The Swedish Agency for Health Technology Assessment and Assessment of Social Services) has published their final report on their systematic evidence review of treatments and rehab for long covid. Available in English here...
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