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  1. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    MD Jonas Axelsson, RED Clinic in Stockholm, Sweden in collaboration with researchers at Karolinska Institutet and Lund University in Sweden, and Stony Brook University in the US. The purpose of the REDBANK Study is to collect information on any long-term symptom grouping that appears following...
  2. mango

    The biology of coronavirus COVID-19 - including research and treatments

    Yes. From a Swedish news article yesterday: SVT: Finland: Hundar används i jakten på smitta
  3. mango

    News from Scandinavia

    Swedish BPS-proponent Jörgen Malmquist wrote a really rubbish opinion piece in Norwegian Dagsavisen the other day, accusing Jørgen Jelstad of fearmongering etc. Jørgen replies in Dagsavisen today :thumbsup: «Donald Trump ville ikke høre på Anthony Fauci. Det vil ikke Jörgen Malmquist heller»...
  4. mango

    ‘Help Holger now’ video about a Swedish man with very severe ME

    Aftonbladet: ME-sjuka Holger riskerar att svälta men räds akuten: Kan vara det sista han gör https://www.aftonbladet.se/nyheter/a/39jeAv/me-sjuka-holger-riskerar-att-svalta-men-rads-akuten-kan-vara-det-sist Google Translate, English ("Holger with ME suffers from starvation but is afraid of the...
  5. mango

    Coronavirus - worldwide spread and control

    No, that is not the case. The numbers have been relatively low for a few weeks, but I see no reason to celebrate. The now rising numbers were expected, with people starting to travel more again, using public transport more frequently when returning to school and work, spending more time indoors...
  6. mango

    POLL: physical vs cognitive PEM - same or different?

    I have severe OI, which means that even sitting up in bed is physical exertion for me. So, I would say thinking while lying in bed. For example: - reading a book or listening to an audiobook - planning a project - making a shopping list - trying to remember something - problem-solving - focussed...
  7. mango

    Coronavirus - worldwide spread and control

    I was reading an interview earlier today, a doctor was commenting on the reasons for numbers currently increasing in several parts of Sweden. He mentioned parties, travel, and people not staying home despite having symptoms. He also said that some people don't even bother isolating themselves...
  8. mango

    Sweden planned study: Cell biological/Immunometabolic changes in myalgic encephalomyelitis, ME, Rosén et al (MECELL)

    Björn Bragée writes about the study on his Facebook page (5 September): The study is called MECELL for short. @Anna H, maybe you could add "MECELL" to the thread title and/or as a thread tag, for searchability purposes?
  9. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Twitter is currently having technical issues
  10. mango

    OMF to launch clinical trials on Mestinon & Kynurenine, post-COVID19 study

    https://www.omf.ngo/2020/09/21/an-update-on-the-mestinon-clinical-trial/
  11. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes, lots of longhaulers in Sweden are already having problems receiving disability from the social insurance agency :( It's the same problems very frequently experienced by pwME (including myself) since 2008. Sveriges Radio: Överläkare: Stoppa utförsäkring av covidsjuka...
  12. mango

    The biology of coronavirus COVID-19 - including research and treatments

    According to a study at Danderyd's hospital in Sweden, four out of five people keep their SARS-CoV-2 antibodies for at least four months. Danderyds Sjukhus: Fyra av fem behåller antikroppar mot SARS-CoV-2...
  13. mango

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    I feel very strongly that it's massively important to highlight the risk that (severe or repeated) PEM might lead to a long-term or permanent worsening of the illness. It's the one thing I really really wish I had known from the very beginning. In my experience, PEM can definitely cause...
  14. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece written by a MD/researcher at Karolinska Institutet, published in the Swedish Medical Association's medical journal. Läkartidningen: Primärvårdens viktiga roll för förståelsen av covid-19-sekvele...
  15. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Treatment advice from Sweden's Occupational Therapists, based on the British Royal College of Occupational Therapists' advice.
  16. mango

    News from Scandinavia

    Today, the Court of Appeal hearing begins about the high-profile case of Richard Lundgren who helped his seriously ill wife to die. The district court sentenced him to 1.5 years in prison for manslaughter, but the verdict was appealed by both sides. Now the defense lawyer Tomas Bodström wants...
  17. mango

    UK writer with ME Susanna Clarke - press articles

    Maggie Stiefvater, a bestselling contemporary YA fantasy writer, comments on the article (Twitter thread): ETA: Here's a blog article where Maggie writes about her own experiences as a writer with severe brain fog etc: https://maggiestiefvater.com/the-years-without-words/
  18. mango

    News from Scandinavia

    Allas: Sofie Holgersson lider av ME/CFS: ”Färgerna hjälper mig” https://www.allas.se/relationer/sofie-holgersson-lider-av-mecfs-fargerna-hjalper-mig/3263632 Google Translate, English
  19. mango

    The use of the labels ME, CFS, ME/CFS

    Can you please expand a bit on what you are basing this statement on? In what way do you feel that Sweden is taking ME seriously? Denmark? (I'm asking because I live in Sweden and I would definitely not agree that ME is taken seriously here, so I would be very interested in getting to know a...
  20. mango

    Coronavirus - worldwide spread and control

    The Public Health Agency of Sweden (FHM) published a report on covid-19 today, about their suggestions and recommendations for the next 12 months. What I found particularly interesting is that they are now finally starting to open up to the idea of maybe recommending face masks (but only in...
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