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  1. mango

    News from Scandinavia

    Article in Läkartidningen, the journal of the Swedish Medical Association: Inflammation, långvarig trötthet och värk – uppdatering av kunskapsläget Lars-Gunnar Gunnarsson, Per Julin, Torbjörn Norén...
  2. mango

    Sweden: Stora Skondal to close

    They get 3000 SEK for a patient's first visit with a doctor at the clinic, and 1 600 SEK for the following visits (much less for physios, psychologists, nurses, occupational therapists, dieticians etc). Compared to 150 SEK for a phone appointment with a doctor, and 650 SEK for a digital...
  3. mango

    Sweden: Stora Skondal to close

    Not that I know of. The contract was problematic from the very beginning, and even worse so after the changes in 2018. It's simply not realistic, the amount of money the clinic is offered by the county council doesn't anywhere near reflect the reality of what it costs to care for ME patients...
  4. mango

    Sweden: Stora Skondal to close

    The Swedish covid patient organisation is intentionally trying very hard to distance themselves from ME and pwME, and their lobbying is along the same lines... They are explicitly calling for exceptions just for themselves as a group, regarding medical care, sickness benefits etc. They don't...
  5. mango

    News from Scandinavia

    Update posted yesterday by Liberalerna:
  6. mango

    Why is ME/CFS getting so little research funding?

    Here's an example from Sweden. A columnist/writer/nurse comments on a recently published BPS book on ME: Apropos bias, she recently wrote a book herself, about the replication crisis and bad research,... :rolleyes:
  7. mango

    Sweden: Stora Skondal to close

    It's absolutely devastating news, a massive loss, very very sad :cry: It's by far Sweden's best biomedical ME clinic, especially for people with severe/very severe ME, and some of the best ME professionals in the country are working there, like Per Julin and Ewa Wadhagen Wedlund. It's...
  8. mango

    News from Scandinavia

    There has been a change, Anders Kjellgren from Linköping will not be attending. :) The Liberals have posted an update on Facebook:
  9. mango

    News from Scandinavia

    Public online event: Säg som det är - Samtal om ME. Vem kan hjälpa när botemedlet saknas? ("Tell it like it is - Conversations about ME. Who can help when there is no cure?") The Liberals in Region Jönköping are organising a public online event this Friday, 27 November. Thread about very...
  10. mango

    Does anyone have a list of common ME symptoms please?

    A slightly different kind of symptoms list by Dr Hng: For those of you who are unable or unwilling to visit Facebook, the same list is available on Google Drive:
  11. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article in a Swedish newspaper about Anna Amholt, a 20 years old professional ice hockey player who has been ill for more than 220 days. (ME is not mentioned.) Aftonbladet: Coronasjuk i 220 dagar – läggs in på sjukhus...
  12. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    Ooh, brilliant! Thank you so much :)
  13. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    It says that if you fill out the form and click through, you will be able to access the material. ETA:
  14. mango

    News from Scandinavia

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Thread here...
  15. mango

    Finland: Duodecim ME/CFS Guideline: Draft Published for Consultation

    The Finnish Medical Society Duodecim recently published their ME/CFS draft guideline ("Good Practice Consensus Recommendation"). Comments can be submitted through a form on their website. Deadline is Friday, 4 December 2020. Anna lausuntosi Krooninen väsymysoireyhtymä (ME/CFS) Hyvä käytäntö...
  16. mango

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    You don't have to be in the UK to participate in the online interview part of the project. International participants are welcome.
  17. mango

    United Kingdom: News from Forward-ME Group

    I think it's really important to remember that without the advocacy that has been done, we might have been in an even worse situation than we currently are. Successful advocacy isn't just about affecting change that moves us forward, it's equally important (if not more) to make sure things...
  18. mango

    Whitney Dafoe Updates

    Ditto.
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