Search results

  1. mango

    News from Scandinavia

    Radio interview with Swedish award-winning crime fiction author Karin Alvtegen. In Swedish, 16 minutes long. P4 Extra - Gästen: Karin Alvtegen lyckligare än förut – trots svåra sjukdomen https://sverigesradio.se/avsnitt/1634453
  2. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece in the journal of the Swedish Medical Association. 70 physicians from the support group for physicians with covid-19 are demanding better medical care for people suffering from long covid, and share some of their personal experiences/symptoms. Sverige behöver en tydlig strategi...
  3. mango

    News from Scandinavia

    The Norwegian ME Association has published the recording of a recent webinar of theirs: Prof Jonas Bergquist talking about his research and the metabolic trap hypothesis (44 minutes, in Swedish).
  4. mango

    Sweden: Stora Skondal to close

    Again, I really believe that the points Clementine made in their post are at the core of the issue. According to the new/2018 contract, the ME clinics are expected to examine, investigate and assess (if those are the correct words in English? ”utreda” in Swedish) in order to diagnose, and then...
  5. mango

    Sweden: Stora Skondal to close

    Yes, it's a general practice/primary care clinic that also offers clinical home healthcare, has pediatric nurses etc. The contract with Stockholm Regional Council is different than the ME/CFS one, so the financial viability will also be different... Here's a news article, saying the owners are...
  6. mango

    Sweden: Stora Skondal to close

    In related news, Bragée ME-Center is hiring... https://candidate.hr-manager.net/ApplicationInit.aspx?cid=1728&ProjectId=143590&DepartmentId=18960&MediaId=5
  7. mango

    Sweden: Stora Skondal to close

    The very same day the Stora Sköndal Foundation announced that they are closing their ME/CFS center, they announced that they are acquiring a new healthcare clinic ("vårdcentral"). Some ME patients are, understandably, upset. ETA: "Interesting" that Stora Sköndal Foundation published a press...
  8. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece in a Swedish newspaper: Expressen: Covid-effekterna som myndigheterna talar tyst om https://www.expressen.se/debatt/covid-effekterna-som-myndigheterna-talar-tyst-om/ Google Translate, English
  9. mango

    Sweden: Stora Skondal to close

    There's an article today in Dagens Medicin (news website for healthcare professionals and decision makers), but it's paywalled. Stora Sköndal lägger ner ME/CFS-mottagning https://www.dagensmedicin.se/alla-nyheter/neurologi/stora-skondal-lagger-ner-me-cfs-mottagning/
  10. mango

    Sweden: Stora Skondal to close

    RME has written a letter to Stockholm Regional Council (which apparently is the official name in English for Region Stockholm, which I've called "the county council" in my previous posts, sorry about that).
  11. mango

    Sweden: Stora Skondal to close

    RME press release: Katastrof för ME-sjuka när specialistvård läggs ned https://www.mynewsdesk.com/se/rme/pressreleases/katastrof-foer-me-sjuka-naer-specialistvaard-laeggs-ned-3055160
  12. mango

    Sweden: Stora Skondal to close

    Stora Sköndal has published a long text on their website today. (Personally, I'm surprised by how they chose to frame their reasons for closing...) https://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/
  13. mango

    Rituximab and placebo response

    (Off topic.. Not about Rituximab or ME, but I couldn't find a better thread.) A Swedish psychologist/doctoral student (if that's the correct word in English?) at Karolinska Institutet is asking for reading recommendations on placebo and psychoterapy research. I believe she's genuinely interested.
  14. mango

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I bought a pair of Bose QuietComfort for the equivalent of approx £130 last year (in Sweden). Not one of their latest models, but I think they are absolutely fantastic :)
  15. mango

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Swedish opinion piece about children with long covid and the difficulties they are facing (including investigations by the social services, possibly meaning suspicions of FII, which could mean that they are at risk of being removed from their families). Barn långtidssjuka i covid får inte vård...
  16. mango

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you so much for everything! You truly deserve a massive lifetime achievement award :trophy@ :hug:
  17. mango

    News from Scandinavia

    Public online event hosted by the Swedish EDS/HSD organisation: Webinar: Överrörlighet, ME och förträngningar i halsryggen ("Webinar: Hypermobility, ME and craniocervical obstructions") Monday, 7 December
  18. mango

    News from Scandinavia

    A severely ill Swedish 15 year old girl is about to be removed from her family/home :cry: The mother writes in the comments that her daughter has been diagnosed by a specialist, but the social services are only listening to an ignorant pediatrician at the hospital.
  19. mango

    BPS attempts at psychologizing Long Covid

    In the journal of the Swedish medical association: Apropå! Autonom dysfunktion och covid-19 https://lakartidningen.se/opinion/debatt/2020/11/autonom-dysfunktion-kan-oka-forstaelsen-av-covid-19/
  20. mango

    Sweden: Stora Skondal to close

    Are your comments about "unnecessary" and "unfair" referring to something I wrote? If so, what and why? All of it? Please expand. Is it not true that you/Bragée ME-center gave official notice of termination of your contract with Stockholm County Council in the beginning of March 2018, during...
Back
Top Bottom