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  1. mango

    News from Scandinavia

    A paywalled news article about Björn Eklund's upcoming book about his recovery from ME, through Rituximab. Sundsvalls Tidning: Valet stod mellan osäker medicin och dödsklinik – efter tio år vann Björn kampen mot sjukdomen...
  2. mango

    Rituximab and placebo response

    I've posted in the News from Scandinavia thread about a Swedish non-fiction book that is about to be published, about a journalist with severe ME who went from bedbound to running marathons after Rituximab: https://www.s4me.info/threads/news-from-scandinavia.647/page-60#post-309115
  3. mango

    News from Scandinavia

    A new Swedish non-fiction book about ME is to be published soon. It's written by a journalist who got ME, became bedbound, and is now running marathons, thanks to Rituximab. The title is "Från sängbunden till maraton eller Den stora ME-skandalen" ("From Bedbound to Marathon, or The Great ME...
  4. mango

    Keep a severe pwME from forced institutionalisation - petition

    There's a thread about Holger here: https://www.s4me.info/threads/‘help-holger-now’-video-about-a-swedish-man-with-very-severe-me.15874/
  5. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    Some notes and comments. Please correct me if I got something wrong. Of the 2 500 people who have been referred to Bragée's clinic so far, 1 100 have gotten a ME diagnosis. Bragée mentioned that the contract states, as do the referral routines, that the people referred to the clinic has got to...
  6. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    It was in this context: They didn't expand on it much, unfortunately. I'm glad they mentioned it, and I would have liked to see them discuss it a bit more in depth.
  7. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    Unfortunately the presentation was not recorded by KI, but I made an audio recording for my own personal use (because I'm too ill to listen to long talks, I have to listen back later, a few minutes at a time). I'd be happy to share it, if anybody wants to have a listen.
  8. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    Bragée said in his talk that this work of his (the thesis, this series of research projects, I think he meant?) was only about pain and fatigue from the beginning. ME was only added much later. Mona Esbjörnsson suggested to him that maybe he should skip the pain bit and focus his thesis only on...
  9. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    Each patient have answered about 1000 questions.
  10. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    The intro is in Swedish apparently, but they will switch to English for the presentation, they say.
  11. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    New link to the zoom meeting: https://ki-se.zoom.us/j/66458405593 ...according to this Facebook post by Bragée: There's still time to join, they haven't started yet.
  12. mango

    Sweden: Webinar 'Half-time control' Bragee December 2020

    The following zoom seminar is open to the public, in English, and starts in less then 10 minutes at time of posting this: Half-time control: Björn Bragée Welcome to attend the half-time control for Björn Bragée, December 11 at 12.30 pm. Due to the current situation, the meeting will be held...
  13. mango

    ‘Help Holger now’ video about a Swedish man with very severe ME

    From the paywalled news article mentioned above: :cry::cry::cry:
  14. mango

    News from Scandinavia

    Holger, a man in Sweden with very severe ME, is about to get sectioned :cry: Is there anything we can do to help? Theread here: https://www.s4me.info/threads/%E2%80%98help-holger-now%E2%80%99-video-about-a-swedish-man-with-very-severe-me.15874/#post-308197
  15. mango

    ‘Help Holger now’ video about a Swedish man with very severe ME

    They are now threatening to section Holger, if he doesn't go volontarily :cry: Apparently the psychiatrists at Ryhov hospital believe they can cure Holger with a few weeks of inpatient psychiatric treatment :mad::cry: Holger's family is being totally ignored and steamrollered by the...
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