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I understand. Sorry to hear you received a disappointing response :( (I chose to contribute to David Tuller's crowdfund instead, this time.)

Yes, I am. I think it's too early to tell here in Sweden, it could still go either way it seems. Sadly, so far I haven't seen any posts or discussions in Sweden along the lines of Monbiot's curiosity and openmindedness. I wrote the following in October. As far as I can tell, nothing has...

I've been thinking a lot about this, trying to understand where OMF is coming from, their priorities and their strategies. It brings to mind something that happened a couple of years ago. OMF had recently changed some design elements on their website. A severely ill pwME friend of mine was...

Here's the current info about long covid on the official Swedish healthcare information website 1177, in case anyone is interested: https://www.1177.se/sjukdomar--besvar/lungor-och-luftvagar/inflammation-och-infektion-ilungor-och-luftror/om-covid-19--coronavirus/besvar-efter-covid-19/ Google...

@Snow Leopard The hardback is 240 pages, so not too too chunky. I found it very easy to read. I definitely overdid it, though. I should have paced myself... :oops: but I just couldn't/didn't want to put it down :bookworm: Allowing myself to be completely absorbed in a great book always makes...

Here are a few snippets, examples:

Out of stock? That's weird... It's shown as available to me when I access the page: "Available. Dispatched from the UK in 6 business days". (However, as I don't live in the UK I can't order from them at the moment because they have temporarily stopped deliveries to all European countries...

Have you checked BookDepository? They are selling the US version of the book, and usually (pandemic restrictions allowing) offer free delivery to the UK. https://www.bookdepository.com/The-Puzzle-Solver/9780316492508 (I ordered my e-book copy from Kobo on the day of the release. Instant download.)

Re: the "Superman" thing. Although I completely understand why, and agree that, it can be problematic in some contexts, I personally am getting the sense it's a way for Whitney to send the message "hold on, don't give up", encouraging us to to try and keep hope alive. In other words, maybe it's...

@Perrier English is not my first language, which perhaps might explain why I don't see this particular word as a problem in this context? To me personally, "discover" seems a completely reasonable word to use about a moment when you are getting a new understanding of something that was not...

I’ve read this book, and I absolutely loved it :) I think it’s amazing :) Sadly I’m not well enough to write a proper review, so I’ll just share some random thoughts for now. It’s really well written, beautifully told, and really well researched. It’s personal, moving, has great flow and...

https://www.facebook.com/whitneydafoe/posts/244340113770355

The Puzzle Solver: A Scientist's Desperate Quest to Cure the Illness that Stole His Son by Tracie White. Alternative title in the UK: Waiting For Superman: One Family's Struggle to Survive - and Cure - Chronic Fatigue Syndrome (expected publication 4 February, 2021). This is a nonfiction book...

I'm reading the book right now (The Puzzle Solver by Tracie White). The quote from the article is true to the book. It's in the chapter where they talk about analysing the chart of Whitney's metabolome test results (page 100 in the ebook). I'm 66% in and so far the book is fantastic, brilliant...

A Swedish novel about ME, based on a true story, is to be published in a couple of months. (I have not read the book, so this is not a recommendation, just info.) Blunda och räkna till hundra ("Close your eyes and count to one hundred") by Pernilla Soland. In the comments below the linked...

Article about ME on the Swedish Brain Foundation's website. Hjärnfonden: "Sjukdomen har stulit mitt liv" https://www.hjarnfonden.se/2020/12/sjukdomen-har-stulit-mitt-liv/ Google Translate, English ("The Disease Has Stolen My Life")

I've been trying to find this preprint, but no luck so far. Does anyone have a link to share? If the info I have received is correct, it's by a researcher called Jessica Eccles. https://www.researchgate.net/profile/Jessica_Eccles...

Podcast episode (in Swedish) by the Swedish National Board of Health and Welfare