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Opinion piece by a politician in Dagens Medicin (website for healthcare professionals in Sweden), demanding better healthcare for people with long covid and ME. Dagens Medicin: ”Vården av långtidssjuka i covid måste säkerställas” En av två kliniker för ME/CFS lägger ned, trots att mycket tyder...

What a lovely little group of mutual support... A few months ago Henrik Vogt was promoting Minna Johansson's BMJ article about her own long covid experience, in Swedish long covid groups.

Aftonbladet: ME-sjuka Jessika: Jag ligger i sängen 22 timmar om dygnet https://www.aftonbladet.se/nyheter/a/GaB8qJ/me-sjuka-jessika-jag-ligger-i-sangen-22-timmar-om-dygnet Google Translate, English

Somebody who contacted Maroti, to ask him about the sources for that particular quote, shared the following list: Recommended general introductory reading: "Hidden from view" by Schubiner & Abbass. A selection of relevant research studies: EAET: Yarns, B. C., Lumley, M. A., Cassidy, J. T...

I couldn't help noticing that a certain somebody from Recovery Norway is sharing Garner's BMJ post in Swedish long covid groups on Facebook... :cautious::grumpy: ...and has reacted to his own post with a "love" emoji! o_O:rofl:

Studio Ett: Fler högpresterande kvinnor långtidssjuka i covid https://sverigesradio.se/artikel/fler-hogpresterande-kvinnor-langtidssjuka-i-covid Interview, 11 minutes (audio, in Swedish). They talk about symptoms, how she was first dismissed and (falsely) diagnosed with anxiety, what the long...

No, they don't cite any sources. I copied the text from this page: https://mbsstudien.se/ I, too, would like to know. I'm sure someone has already emailed the Ethical Review Authority by now, to request a copy of the ethical aproval application for this new study. Will share if/when I find out...

As far as I can tell, the pilot study hasn't been published yet. I think there was a preprint, but it seems it has been withdrawn. https://psyarxiv.com/4wx5b/...

On mbsstudien.se it says: @Woolie, any comments?

Daniel Maroti posted in Bragée Rehab's old Facebook thread today, saying that they are now recruiting participants to a new study https://mbsstudien.se/ Someone wrote a comment with some really important questions for Bragée Rehab: Sadly, the reply from Bragée was hugely disappointing and...

A Swedish clinical guideline for ME has recently been published. Nationellt kliniskt kunskapsstöd: Kroniskt trötthetssyndrom, ME/CFS https://nationelltklinisktkunskapsstod.se/dokument/176d1b90-4fb6-4731-a544-1320d63fd741 There's some more info and discussion in this thread.

Another Swedish article about long covid, also paywalled. This one is about the professional ice hockey player Anna Amholt. (An earlier article about her is linked here.) Aftonbladet/Sportbladet: ”21 timmar vila om dygnet fungerar bra”...

A Swedish article about long covid. Behind paywall. Emma lider av långtids-covid: Känns som att huvudet ska explodera https://www.dn.se/ekonomi/emma-lider-av-langtids-covid-kanns-som-att-huvudet-ska-explodera/ Omni.se writes about the DN article:

Opinion piece about long covid and ME by representatives for three Swedish patient organisations. Aftonbladet Debatt: Långtidscovid avslöjar brister i vården av ME https://www.aftonbladet.se/debatt/a/mBLQjl/langtidscovid-avslojar-brister-i-varden-av-me Google Translate, English

P4 Dalarna: ME-sjuka hoppas få hjälp av coronaforskningen https://sverigesradio.se/artikel/me-sjuka-hoppas-fa-hjalp-av-coronaforskningen

Very good suggestion :) I very often record the webinars and talks I attend. I, too, use Audacity for audio. For recording video on Windows/PC I would recommend OBS Studio (free) or Bandicam (there's a free version, and a full pay for version that lets you record longer videos). Both are very...

Another new Swedish book about ME, available to order now: Mamma med ME by Anna Azouz. (I haven't read the book, so this is just info not a recommendation.)

The Swedish government is proposing 50 000 000 SEK (approx 4 500 000 GBP, 4 900 000 EUR) for long covid research. The decision will be made later this month. Regeringen föreslår 50 miljoner till forskning kring långtidscovid https://sverigesradio.se/artikel/7642610

According to the Swedish Medical Association's journal, legal action is being taken against a researcher in Sweden who is supected of having done long covid research without ethical approval. (The researcher is not mentioned by name, but the details given in the article below have striking...

I came down with ME after a hepatitis A+B vaccination, got worse after the booster shot. I'm greatful for Shepherd's work on this. I feel it's important to talk about it and find out more, but I understand it's a "sensitive topic" especially now in the context of a pandemic. I'm worried and...