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Yesterday the regional board of Västerbotten decided on a supplementary budget, which according to the politicians means that a specialist clinic for ME/CFS in Umeå will finally become a reality. Politician LiseLotte Olsson comments on the decision, saying "It is very gratifying that we can now...

The constant highlighting of this made-up separation is clearly a pattern, at least here in Sweden. ME is simply not part of the discussion. Have a look at all the long covid related Swedish articles (news, medical, opinion pieces, governmental reports, politics, public health etc), and you'll...

Opinion piece in DN (Sweden's largest morning news paper) by doctors suffering from long covid themselves: DN: Sverige senfärdigt kring långtidscovid ("Sweden is late on long-term covid") https://www.svd.se/sverige-senfardigt-kring-langtidscovid/i/senaste

A couple more articles today in Sweden, about long covid. https://tt.omni.se/manga-med-langtidscovid-kanner-sig-misstrodda/a/OQjplO https://sverigesradio.se/artikel/flera-med-langtidscovid-kanner-sig-misstrodda-av-varden It doesn't sound like the National Board of Health and Welfare realizes...

Sahlgrenska University Hospital in Sweden is starting a long covid study. They will investigate what symptoms are common among those who have not been seriously ill, but have been having symptoms for a long time. More than 55 000 people will be invited to participate...

The Swedish government has proposed that 50 million SEK be earmarked for long covid research. The Swedish Research Council (Sweden’s largest governmental research funding body) has now been tasked to prepare for distributing the money...

An easy way to suggest it's all about a maladaptive stress response and unhealthy behaviour, maybe? Put the blame on the patient instead of the virus? The original news article they are referring to is behind a paywall.

Last week an independent group of Swedish physicians with long covid published clinical guidelines for long covid. http://www.langtidscovid.se There's a news article on this in the journal of the Swedish Medical Association: Läkartidningen: Läkare med långtidscovid publicerar kunskapsöversikt...

According to posts on Twitter (I haven't been able to verify the source because of the paywall), Dr Judith Bruchfeld from the Covid clinic at Karolinska has commented on Kjöller's article:

(I'm posting this as info, not a recommendation.) Bragée is arranging a series of educational webinars for physicians. It's free of charge and open to anyone. The first webinar in the series happened last week. A recording is available to watch on their website: Covid-19 och ME/CFS Tankar...

Paywalled editorial by infamous columnist/journalist Hanne Kjöller, in Sweden's largest morning paper (I can't believe they keep publishing her harmful rubbish :grumpy:). DN: Berättelsen om långtidscovid går inte ihop ("The story about long covid does not make sense")...

Many many thanks, Woolie! I really value your thoughts, and I very much appreciate you taking the time to reply. Thank you so much :)

Ditto. And/or, like a never-ending flu + concussion.

It's not primarily about feelings though, is it? It's about survival, if you look at it a bit deeper. PwME are fighting for their lives. It's about a person of power exacerbating stigma and misinformation, which contributes to increased discrimination and ableism, which in turn makes it even...

Oh, really? It only said pre-order when I checked earlier. I double-checked now and it still says pre-order? Also, I wasn't able to find any info about the e-book on that page, like what format, expected release date, whether it's downloadable or only to stream/read in app etc. Thank you so...

Oh, contacting the publisher was a great idea! (I really should have thought of that...) Many many thanks for being so helpful :hug:

Thank you so much, Helene! Very kind :) I'm in Sweden. (Adlibris unfortunately only sells hardback copies, doesn't deliver to your letterbox/doorstep, and I'm unable to pick up parcels from the post office. Book Depository don't sell e-books either, and I'm waiting to find out how their...

Where did you get the e-book, please? I haven't found anywhere to buy it yet, none of the places where I usually buy my e-books has it. Ideally, I'd like to get it in epub format, downloadable to my laptop (because my e-reader doesn't have internet access), but I could convert a .mobi if...

On TV in Sweden this morning: TV4 Nyhetsmorgon: Covid-19 kan utlösa sjukdomen POTS: "Finns jättestor kunskapslucka" https://www.tv4.se/klipp/va/13318146/covid-19-kan-utlosa-sjukdomen-pots-finns-jattestor-kunskapslucka

I posted an opinion piece in the long covid thread today, by a politician demanding better healthcare for people with long covid and ME. It also mentions the sad fact that Stora Sköndal's ME/CFS clinic is closing down. However, I felt this piece of information fit better in this thread: Dagens...