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I agree with you. But as has been discussed here on the forum before, RME does want there to be an emphasis on psychosocial research and care too. Psychosocial research grounded in a biomedical view of the disease, I would hope, but still... RME has a history of silencing members who criticise...

Opinion piece by reps for three Swedish patient organisations. "Ge upprättelse åt de som missbedömts och försummats i sjukvården" https://www.altinget.se/artikel/ge-upprattelse-aat-de-som-missbedomts-och-forsummats-i-sjukvaarden ETA:

It's not a good word... "matthet" in Swedish. I agree, it doesn't describe the nature of PEM. I'm not sure if Google Translate gives the best translation or not. Other synonyms would be lassitude, feebleness, langour, weakness, lacking in strength, feeling faint...

ME on Swedish TV tomorrow Monday, 8 March. Björn Bragée writes in a Facebook post: I've written about Eklund and his book in this thread before, here. Here is a thread about the new study. Link to stream Malou Efter Tio online: https://www.tv4play.se/program/malou-efter-tio (I can't help...

I don't know. I'm trying to find out. Someone I know contacted the Ethical Review Authority, but they weren't able to find any applications by Bragée/Bertilson matching these study titles. It's possible that they are registered under different titles, or maybe they could be sub-studies of...

Merged thread The MEPRO study Bragée Clinics, Stockholm, Sweden Björn Bragée, Bo C Bertilson March 2021 Looking for people with ME/CFS diagnosis, and healthy controls. More info: https://www.bragee.se/nytt_mepro

Speaking of, does anyone know why the StopGET website/campaign disappeared? It had lots of personal stories, if I remember correctly?

Structural Problems in Brainstem and Cervical Spine Cord in ME/CFS https://clinicaltrials.gov/ct2/show/NCT04403854

Opinon piece by Regland (posted in the long covid thread a few days ago)

Here's the Swedish Social Insurance Agency's current view on long covid. Hundratals covidsjuka nu sjukskrivna ett år https://tt.omni.se/hundratals-covidsjuka-nu-sjukskrivna-ett-ar/a/dlqvlO Google Translate, English

A wellness magazine article, a former athlete shares her personal story. Worth a read :thumbsup: Helena har ME: "Jag var elitidrottare – nu kan jag knappt öppna en flaska" https://www.mabra.com/reportage/helena-me-symtom/7331482 Google Translate, English ("Helena has ME: 'I was an elite...

Adding a little bit more context :) More details about the criticism of Ludvigsson's research (Ludvigsson is the researcher in the article that Sharpe highlighted). Critics slam letter in prestigious journal that downplayed COVID-19 risks to Swedish schoolchildren...

I believe this easy-to-read article on tone policing is relevant to the discussion: No, We Won’t Calm Down – Tone Policing Is Just Another Way to Protect Privilege https://everydayfeminism.com/2015/12/tone-policing-and-privilege/ ETA: I was also thinking that it would be interesting to have a...

Some new details in this paywalled article published yesterday: Klubbat: Klart för start av ME-mottagningen https://www.folkbladet.nu/2021-03-02/klubbat-klart-for-start-av-me-mottagningen

You don't want to miss this brilliant opinion piece that was posted in the long covid thread today :) Please click through to the article to increase its traffic/stats!

Brilliant opinion piece, well worth a read :) Please click through to the article to increase its traffic/stats! De som har långtidscovid kan inte viftas bort lika lätt som de ME-sjuka...

The result of this study and an experimental follow-up study was discussed at the IIME conference and colloquium in London 2017. That was before the study was published. At the time, this group of researchers was trying to find out whether it matters if you perform the tests in "whole blood" or...

(Off topic!) There's a long story behind that, actually. B12 was used as a kind of weapon against the Gottfries Clinic, which probably played a big part in them having to close down. Gottfries and others at the clinic had been involved in ME reseach for more than 20 years, so it was an immense...

Opinion piece by three ME doctors/researchers from the Gottfries ME/FM clinic in Sweden (which sadly closed down last year). Använd ME-forskning för att behandla långtidssjuka i covid https://www.gp.se/debatt/anv%C3%A4nd-me-forskning-f%C3%B6r-att-behandla-l%C3%A5ngtidssjuka-i-covid-1.41989524...

The Southern Healthcare Region (Södra sjukvårdsregionen, the four southernmost counties in Sweden) is currently working on assessing the needs and resources of ME/CFS patients. The decision was made in November 2020, and the report is expected to be published in August 2021 at the latest...