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News article by Lund's Univeristy: Activation of ancient viruses during brain development causes inflammation https://www.multipark.lu.se/article/activation-ancient-viruses-during-brain-development-causes-inflammation

Activation of endogenous retroviruses during brain development causes an inflammatory response Marie E Jönsson, Raquel Garza, Yogita Sharma, Rebecca Petri, Erik Södersten, Jenny G Johansson, Pia A Johansson, Diahann AM Atacho, Karolina Pircs, Sofia Madsen, David Yudovich, Ramprasad...

Yes, there's even a word for this kind of service: sensitivity readers.

About long covid in children. Paywalled article in a Swedish newspaper. Läkarna om misstänkt postcovid hos barn: ”Katastrof om vi inte kan hjälpa dem” https://www.dn.se/sverige/lakarna-om-misstankt-postcovid-hos-barn-katastrof-om-vi-inte-kan-hjalpa-dem/

It's individual, not groups. ETA: Sorry, that could have been clearer. Stora Sköndal's is individual. Bragée's is mainly individual too, but they do offer some group based sessions such as talks on dietary advice etc, I believe.

:(:hug:

I'm sure any one of the forum members who are or have been a patient there can give a better answer than I can. My impression is that they don't at all have the same focus on experimental treatments or specific hypotheses. They seem "slow and steady", "tried and tested", "doing important...

I've just read the cover letter/invitation that has now been sent out to potential study participants (ETA: ie people who have heard about the study, for example read about it on Bragée's website or on social media, and contacted the clinic for more info). This bit caught my attention:

Opionion piece in a Swedish newspaper today :mad: It's a response to this (posted in the long covid thread last week): Rehab efter covid viktigare än verkningslösa läkemedel https://www.gp.se/debatt/rehab-efter-covid-viktigare-%C3%A4n-verkningsl%C3%B6sa-l%C3%A4kemedel-1.42656467 Google...

Will it be a representative sample? I don't know enough to comment on the finer details of the methodology etc, but I really hope they have somehow found a way to make sure to compensate for the fact that pwME in Sweden are aware of the general differences between the two ME specialist clinics...

Yes, you're right, both Gottfries and Stora Sköndal had a biomedical approach, Gotahälsan too. Gotahälsan closed down their ME clinic years ago, Gottfries sadly had to close down last year, and Stora Sköndal is closing down 31 May 2021 :cry: Thanks, yes I shared links to the most recent Bragée...

Re: interoceptive signalling. I dug up some old notes of mine, from back when I first heard about Bragée's hypothesis, some years ago. In case anyone is interested, the following is some of what Google told me. The very first thing I noticed was that "interoceptive signalling" returns lots of...

Please don't jinx it! We haven't seen the final version of the NICE guideline yet... we can't be sure he doesn't know something we don't.

I agree 100%! Thank you so much. So many incredibly important observations/points..!

Lately I've often seen brain fog being used as a synonym for "mom brain" too, meaning being forgetful, absent-minded, extremely sensitive/experiencing extreme emotionality... I, too, am concerned that PEM is losing its original meaning :(

I just got an email from my municipality offering me vaccine :nailbiting: I think it's because I'm registered as a home healthcare user? There was no additional info, so I have sent them an email with a lot of questions (which vaccine/make, when, home visit or not, did they consult with my...

We are trying to find out! Have requested copies of the ethical approval applications and will let you know as soon as we know :)

Do we know for sure that these are truly biomedical hypotheses, though? (Genuine question, I'd really like to know.) I'm asking in part because we know this ME center was (is?) also running an ACT study (according to the research plan aiming to correct so called fear avoidance behaviour through...

From the News from Scandinavia thread, about ME and long covid on the Swedish morning tv show Malou Efter Tio:

Watch the interview with Björn Eklund here: https://www.tv4.se/artikel/jIGROJUZK7E6BTZ2ZBMle/bjoern-drabbades-av-me-lag-i-saengen-23-timmar-om-dygnet Watch a part of the interview with Björn Bragée here...