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  1. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Renées råd till ME- och fibromyalgipatienter https://me-cfs.se/info/Filer/renees-rad-till-ME.pdf Renées råd till närstående https://me-cfs.se/info/Filer/renees-rad-till-narstaende.pdf
  2. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Aktivitet och delaktighet i vardagen. Hindrad förmåga i livet. Föreläsning av arbetsterapeut Ewa Wadhagen-Wedlund, ME/CFS-mottagningen, Stora Sköndals neurorehabilitering (2017).
  3. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Aktivitetsförmåga och delaktighet hos personer med ME/CFS – Möjliga icke-medicinska åtgärder Föreläsning av Arbetsterapeut Ewa Wadhagen-Wedlund, ME/CFS-mottagningen, Stora Sköndals neurorehabilitering (2016)
  4. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Osynligt sjuk: medan livet passerar av Karin Alvtegen och Karin Thunberg Boken finns att köpa på Bokus, Adlibris m fl.
  5. mango

    News from Scandinavia

    Excellent idea, thank you! I've created a thread now :)
  6. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Riksdagen: Öppen utfrågning om sjukdomen ME/CFS och infektionsutlöst trötthetssyndrom (2021) https://www.riksdagen.se/sv/webb-tv/video/oppen-utfragning/oppen-utfragning-om-sjukdomen-mecfs-och_H8C220210527ou1 Rapport från riksdagen 2020/21:RFR16...
  7. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Socialstyrelsen: Mer forskning behövs om ME/CFS (2018) https://www.socialstyrelsen.se/om-socialstyrelsen/pressrum/press/mer-forskning-behovs-om-mecfs/ Socialstyrelsen: Översyn av kunskapsläget för ME/CFS (2018)...
  8. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Sidsel Kreyberg: 12 grundregler vid ME https://me-cfs.se/info/Filer/grundregler-kreyberg.pdf
  9. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    IACFS/ME: A Primer for Clinical Practitioners (sammanfattning på svenska) https://rme.nu/wp-content/uploads/2019/04/primer-svensk_sammanfattning_2014.pdf
  10. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    Stonebird: Vård av personer med svår ME https://stonebird.co.uk/CN1.pdf Vad är POTS? https://ehlers-danlos.se/wp-content/uploads/2020/06/Vad-%C3%A4r-POTS-broschyr.pdf
  11. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    U.S. ME/CFS Clinician Coalition: Att diagnosticera och behandla ME/CFS
  12. mango

    In Swedish: Useful resources about ME/CFS and associated conditions

    1177.se Vårdguiden: ME/CFS https://www.1177.se/sjukdomar--besvar/hjarna-och-nerver/langvarig-trotthet-och-narkolepsi/mecfs/ Viss.nu: ME/CFS https://viss.nu/kunskapsstod/vardprogram/me-cfs Riksförbundet för ME-patienter https://rme.nu
  13. mango

    News from Scandinavia

    Info sheet about POTS, in Swedish :thumbup: (Not news, but I didn't know where else to put it.) It can be very difficult to find good information about POTS and other forms of orthostatic intolerance and dysautonomia in Swedish. Especially if you're looking for something short and easy to read...
  14. mango

    Covid-19 vaccination experiences

    @Jonathan Edwards I'm not asking for medical advice, I'd just be interested in your thoughts about this in general. In a hypothetical scenario, if you were about to start treating one of your patients with Rituximab, how many weeks (if any) would you wait after the patient had their...
  15. mango

    Thoughts on the "adrenaline effect"?

    Yes! Exactly this! :laugh::laugh::ill:
  16. mango

    Long Covid in the media and social media 2022

    I previously posted about this in another thread. Here's another article on the same: Läkare anmäls: Sa att kramar och raw food botar postcovid https://www.aftonbladet.se/nyheter/a/Ea2e9G/lakare-anmals-sa-att-kramar-och-raw-food-botar-post-covid Google Translate, English
  17. mango

    Long Covid in the media and social media 2022

    A news article in the journal of the Swedish Medical Association. (ME is not mentioned.) »Det går inte att överskatta vad det gör för psyket att kunna jobba igen« https://lakartidningen.se/aktuellt/nyheter/2022/03/det-gar-inte-att-overskatta-vad-det-gor-for-psyket-att-kunna-jobba-igen/ Google...
  18. mango

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    I, too, extend a heart full of thanks and gratitude to you @Natalie :heart: You’ve done a brilliant job!
  19. mango

    Orthostatic Hypotension: Management of a Complex, But Common, Medical Problem, 2022, Artur Fedorowski et al

    I've read a lot of good things in the Swedish groups on social media, written by some of dr Fedorowski's patients. They are actually getting proper medical investigations, are offered treatments that do seem to help a lot (including pharmaceutical ones), etc. So it's not just empty words. At...
  20. mango

    Use of selection criteria in ME/CFS research

    Could you please help me understand how one could ensure correct reporting and recognition of PEM related harms in such a scenario? If the dilution means there are very few participants with PEM, isn't there a considerable risk that the hypothetical/very real harm suffered by those few...
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