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I think CBT is a very nebulous and malleable thing, and seems to cover a multitude of sins. CBT, by definition, is about patients coming to recognise and correct some kind of unhelpful thoughts and behaviours. And the PACE-flavoured CBT is all about convincing people they are not really ill and...

Yes I can fully appreciate that. It's all too easy at an intellectual level to think you are empathising with and understanding someone, but unless you have personally experienced that thing from inside, only then do you have any real insights. I think my "outsider" perception is that two...

All I was saying is that if someone's ME/CFS deteriorates due to over-exercising, then no matter what the reason for over-exercising, it will be the physiological consequences of that over-exercising that is the problem, and nothing whatsoever to do with any psychological cause.

No, I'd say by definition that is not maladaptive. My assumption was that "maladaptive perfectionism" goes beyond the notion of being a perfectionist, but adds into the mix being obsessively driven to try and achieve the impossible, and being constantly down due to their inevitable and...

Understood, but given we are all arguing so strongly that excessive exercise is what often pushes pwME over the edge, then it must surely follow that those not inclined to exercise much are far less likely to fall foul of that particular trap ... else we are all wrong.

Is there another simple explanation. People with an obsessive craving to always achieve well beyond their realistic capabilities, are more likely to do exactly that when recovering from a debilitating illness - which is the very thing they should not be doing. It wouldn't mean that pwME or long...

Is "in patients with CFS/ME" of any relevance? Is it not the case that anyone with maladaptive perfectionism is going to be more prone to depression? I don't see that ME/CFS has any relevance.

So did I ... but then changed my mind :)

In my experience these sort of folk operate on the principle of plausible deniability, and operating well below the radar. It is their modus operandi. Given what we know of their history, the likelihood of them not "reaching out" as it suits them seem pretty implausible to me. But I grant you...

Hopefully there will be much more widespread motivation and resources to get to the bottom of long covid than there ever has been for ME, so that some real answers are found. In the process it would be great if it furthered better understanding of ME/CFS.

You have to ask the question "why would SW and Co. not do that?" To my mind, no reason whatsoever. I agree with you entirely. I also imagine the network hub that is the SMC will also be very actively engaged behind the scenes ... again you have to ask, why would they not be? The idea that these...

Hmmm ... :rolleyes:

If a vaccine is deemed 90% effective say, what does that then mean for the other 10%? Within that group do they then have the same probability of serious harm / death as anyone else? i.e. Would it mean that vaccinated people would be 10x less likely to come to serious harm, assuming my 90%...

I'm beginning to think these BPS psychs are some of the most irrational people on the planet. Not just unscientific but completely gaga.

That is often known as an avalanche effect, where all is OK until a final straw tips things across into a dramatic collapse of the status quo. But avalanche effect doesn't translate well for what we are talking about I guess. But maybe something along those lines. Except that with PEM the...

Yes, I could buy into that. Threshold is a much more generally understood term. No more precise than any of the other terms, but precision is not an option for this anyway. Although I still prefer envelope as more technically descriptive, I do agree that it is probably not very effective at...

The flies were on me I'm afraid. Not been into this thread for a while and jumped to the mistaken conclusion that @Andy's first NICE-letter post had been today, and thought NICE had given us negative notice, with only today to sort things following their second letter.

Sounds very promising :). And yes, sincere thanks.

Have we managed to do this by the deadline? I presume close of business is passed now?

So why am I not feeling surprised ...