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  1. Barry

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    Which aligns with the notion that people conflate "Interest" with with "Conflict of Interest", and from that seem to argue that a (Conflict of) Interest is not necessarily such a big deal. Sometimes maybe confused thinking, and sometimes I'm sure deliberate misdirection. How people can argue...
  2. Barry

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    This arbitrary distinction between financial and non-financial CoI seems incredibly naive and short-sited. It's about potential motivations to mislead, and there is no shortage of very powerful non-financial motivations in that regard. If an interest has a non-trivial potential to motivate...
  3. Barry

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    Oh lord ... I hadn't realised there were such deeply-polarised opinions of who has ME and who has CFS. There is no hard evidence at all so far, so can only be opinions.
  4. Barry

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Yes, fully agree. I was just being a bit of a pedant and saying there must be some change, not that such changes would necessarily be significant ones. That I could well believe. I've not been following the technicalities of this discussion, so in this sense I am coming to this cold. Yes, I do...
  5. Barry

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Although I have no medical qualifications whatsoever, this feels inevitably correct to me. You take any system, biological, mechanical, whatever, with non-rigid joining structures, then they will align a bit differently according to the direction of the forces they are being subjected to. So if...
  6. Barry

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    So if the CSF is not going where it is supposed to go, but is still flowing unhindered, that presumably means it is going somewhere else, somewhere it is not supposed to go. Is it known where it does flow to in these circumstances?
  7. Barry

    Prof M Sharpe becomes president of board of Academy of Consultation-Liaison Psychiatry

    He seems to have been busy promoting himself and his unhelpful beliefs: https://www.clpsychiatry.org/aclp-news/y2019/m01/cfs-dispute/
  8. Barry

    Jess Stafford on BBC Radio 4's "You and Yours" Programme

    Jess Stafford called into the Radio 4 "You and Yours" Programme. The subject is Loneliness, and Jess was discussing her ME. https://www.bbc.co.uk/sounds/play/m000bx1p Starts at 15.04. Pretty sure this must be the same Jessica Stafford who was the subject of this MEA piece back in July:
  9. Barry

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I think it's much better without :rofl:. I guess the men carrying the barn would have had their hands full ...
  10. Barry

    A proposal for ME Action: a commitment to evidence-based medicine

    Which is a major challenge for anyone who is severely ill, but is is exactly right nonetheless.
  11. Barry

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    Quite :rolleyes:. That alone demonstrates incompetence and/or deceit.
  12. Barry

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    Agree, was pre-PACE by the look of it - 2002. Do we have info on this trial?
  13. Barry

    A Trial of ME - Elizabeth's Story. #MEAction article, November 2019

    Exactly. How the hell do psychiatrists get away with this nigh-on criminal behaviour!
  14. Barry

    Nocebo and the contribution of psychosocial factors to the generation of pain, 2019, Benedetti et al

    I suppose in the case of IBS they may have discovered perpetual motion ...
  15. Barry

    Abnormalities in the urine of people with ME/CFS? A clinician asks for feedback

    So could this be the other side of the coin for "something in the blood", instead being "something that would otherwise be in the blood"?
  16. Barry

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    Glad it's not just me! Sounds like they are saying that if you go round and round and round over the same old bias-riddled sampling method, there will come a point you just have to stop. Then voila! You can call it a grounded theory. Note: This is a tongue in cheek comment! Though truth can be...
  17. Barry

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    https://methods.sagepub.com/reference/encyclopedia-of-survey-research-methods/n419.xml "A purposive sample, also referred to as a judgmental or expert sample, is a type of nonprobability sample. The main objective of a purposive sample is to produce a sample that can be logically assumed to be...
  18. Barry

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    Communication is about listeners comprehending a message and gaining new insights from it. Information overload achieves none of that, and if anything alienates people to any further attempts. You got it right I think.
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