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  1. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Yes, I actually mentioned that at the end of the original post, but I think I should have added it somewhere where it is easier to notice. :) Edit: Now I've changed the original translation in the post to make this more clear. :)
  2. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    One of the long covid studies the Hungarian Academy of Sciences is funding is this, as mentioned previously: - Training-induced compensation of cognitive decline in post-covid patients (Zsófia Anna Gaál, Research Centre for Natural Sciences) I saw it today that they are recruiting now and they...
  3. Wyva

    News from Southeastern Europe

    Here is the full programme of the upcoming webinar "ME/CFS and post Covid in the Balkans" organized by EMEA:
  4. Wyva

    News from Southeastern Europe

    I saw this today on the Slovenian ME/CFS, fibro etc Facebook page. They will talk about the diseases on a regional radio station for ME/CFS Awareness Day. Google translate:
  5. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    A few days ago a Hungarian network of private clinics organized a series of short lectures on long covid and I watched the two videos about the neurological manifestations. One speaker couldn't participate due to illness, so it was a different neurologist (Dr Anita Mező) who gave the...
  6. Wyva

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    So now that everyone is checking their platelet count :) : Mine is very consistently right in the middle of perfect. I do have severe fatigue as part of my symptoms.
  7. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    This is from the Czech Republic. I started following the Facebook page of their ME/CFS patient organization and these are some recent posts from there (with Facebook's translation to English): (In short: looks like they managed to get the Czech committee that develops guidelines to approve...
  8. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    I understand. To be honest, when I feel better then I am very concise and to the point. Then when I'm getting worse I start to find it difficult to focus my thoughts in that same way and start to get meandering and explain everything in a much longer text. I'm trying too hard to get my thoughts...
  9. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Thank you for all the wonderful messages so far, they are great and very useful. For those who still may be planning to write a similar message: I can still accept messages today and tomorrow, but starting from Monday I won't accept more. So if they would like to write one, today or tomorrow is...
  10. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    Yes, of course. I'm saying that when she said CFS patients without PEM can benefit from HIIT, even that is not correct, since the study wasn't about HIIT but about moderate level continuous exercise vs moderate level interval training. (This is because they had to match the workload of the two.)...
  11. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    I've found the paper about HIIT and CFS she was referring to. We have a thread on it: Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B From the paper: This doesn't actually sound like HIIT, it is not intense enough...
  12. Wyva

    "Treating Long-COVID: Part 1" by Doctor B (the PT) i.e. a physical therapist

    Ehh, what is she talking about? HIIT is brutal, that's the point. I'm not even sure it is a good idea for beginners as it is a perfect fitness regimen to make someone lose motivation quickly because of how rigorous and demanding it is. It is for fitness freaks like I was and this was one of the...
  13. Wyva

    News from Germany

    There was a presentation by a German doctor called Andreas Stengel from the University of Tübingen at the international long covid conference of the Hungarian Academy of Sciences. He is very definitely a BPS proponent. I wrote a very short summary and you can also watch the video there if...
  14. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The second part was less interesting to me. However, we still weren't left without some first class BPS bullshit but this time it came from a German guy called Andreas Stengel from the University of Tübingen. Just in short: among the predictors of post-covid fatigue he mentioned previous...
  15. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    So today is the international long covid conference of the Academy (posted at the top of this page) and I'm watching it online. So far it is much better than last time but not perfect. The first section was the introduction basically, a brief summary of long covid in general. It wasn't so...
  16. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The Academy is launching a post-Covid national research program Previously I wrote about the two rounds of post-covid studies that already won funding from the Academy (the topic was post-covid everything, including economic, social impact etc of the pandemic, so not just long covid but most...
  17. Wyva

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    Not exactly what you asked but I think it is still interesting and related: There was someone in my own group who was diagnosed with ME/CFS after a parvovirus infection. She said she went through hell but recovered after three years. Then she caught covid and long covid and although the...
  18. Wyva

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    "Further, research into other post-viral syndromes such as myologic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has shown a heightened risk for individuals who have experienced stressful life events,29 and there is substantial overlap in the symptoms of long COVID and ME/CFS.30,31...
  19. Wyva

    Preprint: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries (...), 2022, Paul, Fancourt

    Full title: Does pre-infection stress increase the risk of long COVID? Longitudinal associations between adversity worries and experiences in the month prior to COVID-19 infection and the development of long COVID and specific long COVID symptoms Abstract Background Long COVID is increasingly...
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