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I'm trying to catch up with things a bit. I didn't even really check Facebook when I was on my break for health reasons so I missed this very sad post from the Czech ME/CFS patient organization from August. Translation: Here is the Google translated version of their full announcement. If...

An interview with Dr Ádám Dénes about covid and its effects on the brain. His field is neurobiology/neuroimmunology and he is one of the people who received a grant from the Hungarian Academy of Sciences to research long covid. He is investigating the role of microglia at the Institute of...

After a quick glance, this seems to be worse than the one created for adults with LC. CFS is mentioned but they don't really seem to know what they are talking about: There is a long list of studies with a short summary of their findings for each. Here CFS is mentioned again as such a...

I've seen the documentary about her. She tried stem cell therapy, where her immune system was basically destroyed with chemotherapy first, before the transplantation. It looked quite brutal and dangerous. She says she feels better now but the disease is still not really gone for her. It's just...

Most valuable player? From sports?

David Attenborough, the man who was already old when I started to watch his documentaries as a small kid but here we are 30 years later and he still keeps releasing new films every year. Sounds like that autobiography might have been a bit more premature and he should publish another one when he...

Musk, as a bit of a covid skeptic, probably couldn't care less about people with LC.

My personal experience: My disease started with an EBV infection and years later my GP decided to test me again for it. The IgG and EBNA values showed that I had a past infection but the IgM, the one that is indicative of a fresh infection, came back with the label that could be translated as...

Abstract Background Autoimmunity has been reported in patients with severe COVID-19. We investigated whether antinuclear/extractable-nuclear antibodies (ANAs) were present up to a year after infection, and if they were associated with the development of clinically relevant Post-Acute Sequalae...

There is someone in my group who tried it but she said for her it was a big disappointment, although she had high hopes.

The BMJ: Long covid: protesters outside the White House demand better care Protesters took to the pavement outside the White House on 19 September to demand a better deal for people affected by long covid, complaining that the Biden administration’s plans fell short on action and funding...

From what I can see, only one person with CFS was included in this study, so feel free to move this to a different subforum if that's better suited.

Full title: Differences in outcomes after total hip arthroplasty for osteoarthritis between patients with and without central sensitivity syndromes other than fibromyalgia Abstract We investigated the differences in outcomes after total hip arthroplasty (THA) for hip osteoarthritis (HOA)...

Key Points Question Is psychological distress before SARS-CoV-2 infection associated with risk of COVID-19–related symptoms lasting 4 weeks or longer, known as post–COVID-19 conditions? Findings This cohort study found that among participants who did not report SARS-CoV-2 infection at...

So I have no idea what is going on here, because those screenshots with the tweets were pretty confusing to me. But I did spot CF, fibromyalgia and ME here and there in that text. Edit: I just realized more info was added to the above post a bit later, so mine is a bit redundant now. :)

An abstract published in Ideggyógyászati Szemle Proceedings (Clinical Neuroscience Proceedings) by neurologists at the Hungarian National Institute of Mental Health, Neurology and Neurosurgery. This is the Google translated version: Post-Covid syndrome autonomic nervous system abnormalities...

This is also how it was explained in my English grammar books (they teach British English here). Now I actually looked this up in a book I have titled Cambridge Grammar of English (from 2011) because it has a chapter about the grammatical differences between the two (and it is 10 pages long)...

I had to reread the last sentence 2 or 3 times until my ME brain realized that it is not actually "Patients pretending..." :oops:

"Risk factors for the chronification of symptoms may include having several symptoms at time of testing and the presence of cognitive symptoms evidenced by a difficulty concentrating. A recent study described the longitudinal evolution of symptoms over 12 months and suggested neurologic symptoms...

Full title: The chronification of post-COVID condition associated with neurocognitive symptoms, functional impairment and increased healthcare utilization Abstract Post-COVID condition is prevalent in 10–35% of cases in outpatient settings, however a stratification of the duration and...