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I watched some parts of this: he is feeling a bit better now and is basically doing a Paul Garner in his own way. He even says that what has helped him is the same that also helped many recovered ME/CFS patients. :banghead: Although I have to admit he does warn us that this may be a...

Thank you for warning me. This whole thing with the thyroid and the discovery of the Hashimoto's and its exclusion for my ME/CFS symptoms happened this year, so it is still very fresh. My thyroid will surely be checked out regularly, since I'm not sure I will be able to tell if/when my thyroid...

It's true that the start of my period makes my symptoms worse. But otherwise I have a lot of fluctuations in my symptoms that don't follow any kind of regular pattern at all. Extra swelling is also guaranteed in PEM for me. So it's the typical ME fluctuations of good days and bad days, no...

Ok, I think I've found what looks the most similar to what I have. (As a summary: this generalized edema is one of my worst symptoms and it appeared with ME/CFS and it gets worse or better together with the other symptoms I have but it never fully goes away. Ultrasound didn't show it...

From MEAssociation: This opinion piece was featured in the British Medical Journal online this morning and is causing mixed views to be expressed. It tries to cover a wide range of opinion including those held by some in the medical profession. Controversial topics include exercise, graded...

BMJ feature: Chronic fatigue syndrome and long covid: moving beyond the controversy Long article, which starts with fun stuff like: “I submitted the first positive trial of cognitive behavioural therapy [CBT] as a treatment for chronic fatigue in the ’90s,” recalls Michael Sharpe, a professor...

This post is copied and some posts discussing the article moved from this thread. BMJ feature: Chronic fatigue syndrome and long covid: moving beyond the controversy Long article, which starts with fun stuff like: “I submitted the first positive trial of cognitive behavioural therapy [CBT] as...

Bloomberg article: Long Covid May Help Us Understand Other Chronic Diseases What bothers me is that again, they say that until now they didn't really know which viruses are more likely to cause ME/CFS. Edit: also about being wiped out: only two years before my EBV infection, I had a much more...

Purpose: Much effort has been directed toward studying COVID-19 symptoms; however, the post–COVID-19 phase remains mysterious. The aim of this work was to conduct a clinical and neurophysiological evaluation of physical and mental fatigue in COVID-19 long-haulers and to study whether markers of...

Thank you for informing us of all this, it is very useful, @Dx Revision Watch I may be off-topic but I started digging around a bit to see what's going on with other diseases that get mentioned a lot on this forum. Here is what I found if someone's interested: 1. In ICD-10 (I'm looking at the...

Apart from the US and the UK, of course. I'm looking for any other countries, even if they just quietly removed the CBT/GET recommendations, so that I can give more examples to my GP to show him that a shift is happening. (This is in connection with the possible ME/CFS clinic he has in mind.)

Breaking news! (?) I just came back from my GP and it turns out he cannot diagnose me with ME/CFS because GPs cannot add these kinds of diagnostic codes like that, it won't show up in the system. And because there is no one who diagnoses you with this, he is trying to refer me to that...

Epic e-scooter trek to support charity I wonder how he'll manage the unpredictability of the illness but maybe longer breaks will be added when necessary. I myself rarely have six good days in a row (but that's just me of course). He is raising funds for ANZMES, by the way. “It will be a test...

Moved post Guardian article: Why are women more prone to long Covid? The explanation mostly comes from Akiko Iwasaki, and a more robust immune response, T cell activity, autoimmunity are mentioned but also that these kind of diseases are taken much less seriously due to the fact that women are...

I also had my second Astrazeneca vaccine, after three months. Me: mild/moderate, in my 30s. I had quite strong but otherwise normal side effects with the first vaccine the following day. People say that the second AZ shot has only very mild side effects but for me this wasn't the case: I didn't...

They sent a letter to NICE in connection with the guidelines. The text of the Facebook post:

25% ME Group stance on exercise https://25megroup.org/25-me-group-stance-on-exercise https://25megroup.org/wp-content/uploads/2020/08/25-ME-Group-stance-on-exercise.pdf We are the 25% ME Group Charity, the only charity concerned specifically with the needs of those most severely affected by...

Copied post They sent a letter to NICE in connection with the guidelines. The text of the Facebook post:

Nature: The four most urgent questions about long COVID Quite a long article, in short: - How many people get long COVID and who is most at risk? - What is the underlying biology of long COVID? - What is the relationship between long COVID and other post-infection syndromes? - What can be done...