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  1. Wyva

    Covid-19 vaccination experiences

    @FMMM1 Thanks! I'm not really worried about the AZ vaccine and its effectiveness in general but rather about my own low antibody levels after the vaccine. There's an update actually: due to the controversy around the negative test results for some of the Sinopharm vaccines, it has been offered...
  2. Wyva

    Covid-19 vaccination experiences

    What's the case with checking antibody levels after the vaccines? I'm asking because here the communication about this is horrible, statements often contradict each other (even the same person from healthcare sometimes contradicts himself) - I guess this is because they really want people to get...
  3. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    They mention symptoms without a detectable cause as one of the leading psychiatric symptoms of long covid: (edit: and no such thing is mentioned in the organic disease part) And the literature they used:
  4. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    It may take years before it turns out how much the epidemic has actually ruined children Very long article, which focuses on all kinds of covid and pandemic-related mental health issues in children, but of course a big part of it is about long covid because obviously that is also a mental...
  5. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Psychiatric Times: Developing a Collaborative Approach to Post-Acute Sequelae of SARS-CoV-2 Infection Authors are psychiatrists from Harvard Medical School: Long COVID-19 challenges clinicians more than ever to listen to patients and break down the false dichotomy between mental and physical...
  6. Wyva

    Long Covid and ME/CFS virtual summit

    NOT a recommendation: FREE Long Covid and ME/CFS VIRTUAL SUMMIT July 5 - 12, 2021 Sarah Myhill, Jacob Teitelbaum, Charles Lapp, Raymond Perrin and lots of other people, yoga instructors, nutritionists, people doing music therapy, meditation, functional medicine, vagus nerve stimulation...
  7. Wyva

    Shadow Burden of Undiagnosed (ME/CFS) on Society: Retrospective and Prospective—In Light of COVID-19, 2021, Araja et al

    I haven't read all of it but this is what they wrote about the criteria they used: Edit: and also: Edit2: prevalence and the ratio of certain diagnostic codes used (G93.3 is PVFS/ME, R53 is malaise and fatigue, B94.8 is for Sequelae of other specified infectious and parasitic diseases):
  8. Wyva

    News from Scandinavia

    Any news? Is it still the same?
  9. Wyva

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    Two expert opinions on this study (press release by the New Zealand Science Media Centre): One is from Dr Bronwyn Lennox Thompson, Senior Lecturer, Academic Coordinator Postgraduate Programmes in Pain & Pain Management, University of Otago, Christchurch: "The major caution about this study is...
  10. Wyva

    I AM MADELINE podcast series

    There is also a very long article about her: ‘I Shouldn’t Have to Beg for My Life’ “Many patients are unable to work and so, you know, it interrupts their career, it interrupts their education, and it decreases their finances, and many are on disability and they simply cannot support...
  11. Wyva

    BPS attempts at psychologizing Long Covid

    I'm not sure if this is due to the different circumstances, different history/current perception of such illnesses in different countries, and I'm not part of any foreign/internation long hauler groups. But in the Hungarian LC group there are plenty of people who say they have panic attacks or...
  12. Wyva

    Well-known, famous people with Covid-19 and Long Covid

    LOL, I have a third name for it. ;) Chronic inflammatory response syndrome, also not a thing. I've learnt about it from the website of those doctors who are pushing ivermectin for long haulers (also for acute covid of course). They used it as another name for ME/CFS. According to Mepedia...
  13. Wyva

    Analysis of Gender Differences in HRV of Patients with [ME/CFS] Using Mobile-Health Technology, 2021, Capdevila et al

    There's an article about this now. An app to help assess the severity of symptoms in chronic fatigue syndrome https://medicalxpress.com/news/2021-07-app-severity-symptoms-chronic-fatigue.html Additional information I didn't know: In this sense, Drs. José Alegre and Jesús Castro, both from...
  14. Wyva

    Post-Acute COVID-19 Syndrome and the cardiovascular system: What is known?, 2021, Dixit et al

    I don't know much about the cardiology part but as far as we are concerned, this review is far from great: This seems to come from the US, UCLA more precisely. Aren't they supposed to be more enlightened about this there? o_O
  15. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Guardian article: ‘I felt betrayed’: how Covid research could help patients living with chronic fatigue syndrome This is another article in "The pain that can't be seen" series that we keep seeing in the last couple of days and I think this one is the best written so far. Anthony Komaroff...
  16. Wyva

    The Neurological Manifestations of Post-Acute Sequelae of SARS-CoV-2 infection, 2021, Moghimi et al

    This is not obvious from the abstract but a huge part of the review is about ME/CFS and it basically summarizes almost everything about it (what kind of infections may trigger it, what the biological findings are, what might be the underlying mechanism, what kind of treatment they are...
  17. Wyva

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    As @MSEsperanza mentioned this article is part of a larger series of articles, titled "The pain that can't be seen". Sufferers of chronic pain have long been told it's all in their head. We now know that's not true. This series looks at why doctors are playing catch-up on chronic pain...
  18. Wyva

    News from Doctors with ME

    This thread is intended for posting announcements from, and news about, Doctors with ME. ___________________ "The new Doctors with M.E. website has been launched, continuing the steady rollout of our mission and vision." https://doctorswith.me/ Also, here are the honorary fellows, including...
  19. Wyva

    Investigation of Long COVID Prevalence and Its Relationship to Epstein-Barr Virus Reactivation, 2021, Gold et al

    This is what I found on Wikipedia: Latent EBV in B cells can be reactivated to switch to lytic replication. This is known to happen in vivo, but what triggers it is not known precisely. In vitro, latent EBV in B cells can be reactivated by stimulating the B cell receptor, so reactivation in...
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