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  1. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    9,984 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  2. Andy

    UK: Conference: MitOX 2024, 12th April 2024

    ABOUT MITOX MitOX is our annual meeting packed with short talks and posters on cancer metabolism, neuroscience, diabetes, mitochondrial disorders and general mitochondrial biology. This one day hybrid conference is ideal for researchers with an interest in mitochondria from both academia and...
  3. Andy

    Preprint IgG Antibody Responses to Epstein-Barr Virus in ME/CFS:Their Effective Potential for Disease Diagnosis & Pathological Antigenic Mimicry, 2023, Fonseca

    Looks to be a revised abstract. Abstract Background and Objectives: The diagnosis and pathology of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) remain under debate. However, there is a growing body of evidence for an autoimmune component in ME/CFS caused by the Epstein-Barr virus...
  4. Andy

    Review Nutrition and Chronobiology as Key Components of Multidisciplinary Therapeutic Interventions for [FM] and Associated [CFS]... 2024 Carrasco-Querol+

    Full title: Nutrition and Chronobiology as Key Components of Multidisciplinary Therapeutic Interventions for Fibromyalgia and Associated Chronic Fatigue Syndrome: A Narrative and Critical Review Abstract Fibromyalgia (FM) is often accompanied by chronic fatigue syndrome (CFS). It is a poorly...
  5. Andy

    Earseeds, Acuseeds

    Dragons' Den: ME charities criticise BBC show for 'promoting unproven treatment' "BBC show Dragons' Den has been criticised by myalgic encephalomyelitis (ME) charities after an entrepreneur with the condition pitched a medical product she says helped improve her own health."...
  6. Andy

    Similar Patterns of Dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue and Post-COVID-19 Syndromes 2023, Ryabkova et al

    "Patients with ME/CFS were included in the study if they met all three of the most commonly used sets of ME/CFS diagnostic criteria (Fukuda et al. (1994) CFS criteria [11], the Canadian Consensus criteria of ME/CFS (2003) [12] and the US Institute of Medicine, now called the National Academy of...
  7. Andy

    Similar Patterns of Dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue and Post-COVID-19 Syndromes 2023, Ryabkova et al

    Now published, https://www.mdpi.com/1873-149X/31/1/1 Abstract Background: There is a considerable overlap between the clinical presentation of post-COVID-19 condition (PCC) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Many of their common symptoms can be linked to...
  8. Andy

    Review Pulmonary Rehabilitation for individuals with persistent symptoms following COVID-19 2024 Daynes et al

    Abstract Topic importance COVID-19 can cause ongoing and persistent symptoms (such as breathlessness and fatigue) that lead to reduced functional capacity. There are parallels in symptoms and functional limitations in adults with post-COVID symptoms and adults with chronic respiratory diseases...
  9. Andy

    Brain FADE syndrome: the final common pathway of chronic inflammation in neurological disease, 2024, Khalid A. Hanafy

    From table 2. Symptoms of overtraining syndrome. Fatigue, Insomnia, Anorexia Depression, Irritability, Weight loss Bradycardia, Agitation, Lack of mental concentration Loss of motivation, Tachycardia, Heavy, sore, stiff muscles Hypertension, Anxiety Restlessness, Awakening unrefreshed From...
  10. Andy

    Earseeds, Acuseeds

    I don't think that investors, or their representatives, becoming directors of a company that they have invested in is unusual. I would guess that this was prearranged to take place once the program was broadcast.
  11. Andy

    Earseeds, Acuseeds

    https://www.independent.co.uk/life-style/dragons-den-steve-bartlett-giselle-boxer-acu-seeds-b2481733.html
  12. Andy

    Earseeds, Acuseeds

    From an Action for ME tweet "We have coordinated an open letter with other M.E. orgs in response to the recent Dragons Den episode in which a contenstant made unevidenced claims regarding the efficacy of 'acu seeds' as a treatment for #MECFS You can view the letter here...
  13. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    If you haven't sent it yet, there are 9 days left to get your spit kit in the post. We still have over 3,900 kits yet to be returned to us, so we are hoping for a last minute surge.
  14. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 15th Jan. Facebook: https://www.facebook.com/sci4me/posts/pfbid02bAh3MiA8VcaTezU1V39EkZU92rVBrE2UTehhSQ6o2SCEr2JA9qWqFxRQrQqYYmYVl Mastodon: https://med-mastodon.com/@s4me/111798811221003506
  15. Andy

    Earseeds, Acuseeds

    Dragons’ Den contestant gets offer from all six Dragons for an Ear Acupressure Device "Here, I am afraid, we might have a major problem: THERE IS NO GOOD EVIDENCE TO SUPPORT ANY OF THESE CLAIMS! I thus do wonder whether the venture of Giselle Boxer might be a case for the Advertising...
  16. Andy

    The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium

    Report from ME/CFS Vereniging, Kick-off symposium NMCB. A memorable event. Dutch, https://me-cvsvereniging.nl/nieuws/kick-off-symposium-nmcb-een-gedenkwaardige-gebeurtenis/ Google translated English...
  17. Andy

    Article in Irish Times on Chronic Fatigue and similar with a focus on psychologist, Vincent Deary

    He's got a book to sell. ‘Work needs rest and rest takes work’: fatigue specialist Vincent Deary on coping with life https://www.theguardian.com/lifeandstyle/2024/jan/21/work-needs-rest-and-rest-takes-work-fatigue-specialist-vincent-deary-on-coping-with-life
  18. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 15th Jan. Facebook: https://www.facebook.com/sci4me/posts/pfbid0AaWuuphEfgUdNeoEzWbLfu15eAxmagLndB8xdV9fQKgwEsWFqGPHSF2c9hLu1bZhl Mastodon: https://med-mastodon.com/@s4me/111793498159555667
  19. Andy

    Earseeds, Acuseeds

    Just in case it might help anybody in the same situation, I came up with this wording - feel free to copy or adapt as might be useful. "Many thanks for the link, I appreciate that despite everything you have going on you took the time to send it through. In the ME/CFS community we are used to...
  20. Andy

    Media articles about endometriosis

    New article. ‘Gaslit by doctors’: UK women with endometriosis told it is ‘all in their head’ Women with endometriosis who have endured years of excruciating pain are being “fobbed off” by doctors and told their symptoms are “all in their head”, leading them to give up seeking NHS treatment...
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