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Pseudoscience exacerbates the burden of disease Victims of ME deserve better than dopey Dragons and ear seeds https://thecritic.co.uk/pseudoscience-exacerbates-the-burden-of-disease/

#MEAction UK And Scotland Update Prevalence Figures Based On New Data "Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based on a recent US survey." "The Center for Disease Control (CDC) has published results of a survey which provides...

A very quick look at the HRCS Online website seems to suggest that to be included requires submitting data to them for inclusion, so that would probably be why so few charities are included - they are either not aware of this or have enough to do already.

https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Currently on 10, 091 The ME Association kindly shared on Twitter.

In case it is of use, I have recorded my progress through this so far. I think that many pwME will be excluded due to relative complexity of the platform. To submit comments, or "ideas" as the site calls them, you will need to create an account. Create an account. Click on Log in (top right...

Also see, Long Covid – Into the Third Year, 2023, Timothy Meagher

Tim Meagher is Vice President and Medical Director Munich Re, Canada (Life) https://www.munichre.com/us-life/en/company/management/subject-matter-experts/Tim-Meagher-bio.html "Munich Re is a leading global provider of reinsurance, primary insurance and insurance-related risk solutions."

"Are Me/cfs and Long COVID the Same? Increasingly, comparisons are being drawn between ME/CFS and Long COVID.7,8 The emergence of debilitating fatigue as a prominent symptom of Long COVID, and its persistence beyond 6 months (a defining feature of ME/CFS) has triggered this comparison...

[Published in the Journal of Insurance Medicine] Long COVID is now a recognized complication of acute COVID-19 infection. As the COVID-19 pandemic moves into its third year, the prevalence of Long COVID continues to increase. Many individuals report symptoms lasting longer than a year, and a...

Good question. A quick Google found this paper that looked at a cohort in the US, which says, "Of the 19 constituent codes, we find 5 that meet our Bonferroni corrected significance threshold (see Supplementary Table 1). The only significant sub-code to D89 was D89.9 (immunodeficiency...

Of course, "the ICD-10 code that best reflects ME/CFS symptoms" may not be, and probably isn't, the actual code used for every patient.

Full title: A Critical Appraisal of the Whack-a-Mole and Swivel Chair Signs in the Diagnosis of Functional Movement Disorders Abstract Background The demonstration of positive signs during neurological examination is a cornerstone of the diagnosis of functional movement disorders, however, the...

[In worms] Highlights Hypoxia rescue and hyperoxia sensitivity of complex I mutants are conserved in C. elegans Hypoxia rescue is independent of HIF activation or attenuation of ROS toxicity NDUFA6/nuo-3(G60D) mimics acute hypoxia in restoring complex I forward activity Residues in the CoQ...

[In mice] Abstract Oxidative phosphorylation (OXPHOS) consumes oxygen to produce ATP. However, the mechanism that balances OXPHOS activity and intracellular oxygen availability remains elusive. Here, we report that mitochondrial protein lactylation is induced by intracellular hypoxia to...

For what it is worth, the full version of the editorial is now available, and the paper they actual reference from Dotan et al is this one, On the reliability and validity of central fatigue determination, 2021, Dotan et al Abstract Physical performance fatigue can be ascribed to both...

UK health research funding has increased since 2004, reaching £5 billion in 2022 with growth in translational and infection research, but is now plateauing. A report published today, the UK Health Research Analysis 2022, provides the most detailed overview yet of UK health research funding from...

News in Brief post for January 2024 on Reddit. https://www.reddit.com/r/cfs/comments/1ag72ls/news_in_brief_posts_for_january_2024_covering/

HARD TO BELIEVE: In Kent (UK), the NHS advocates and pays for pure quackery "After the nationwide huha created by the BBC’s promotion of auriculotherapy and AcuSeeds, it comes as a surprise to learn that, in Kent (UK), the NHS seems to advocate and provide this form of quackery."...

The link to Twitter above is to Audrey Ryback posting, "We still urgently need 30 more healthy volunteers to carry out the study as planned. Please share with anyone eligible/who can spread the word in Sheffield! Volunteers get a £25 shopping voucher. Thanks to all who signed up & shared so...

All authors are from the Department of Clinical Psychology and Psychotherapy, University of Wuppertal, and also produced these two reviews last year, Evidence base of digital psychotherapy for somatic symptom disorder, functional somatic syndromes and bodily distress in adults: A systematic...