Search results

  1. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    The 20,500 figure is the most up to date one, the slide quoting 20,000 must have been created from slightly older information and the discrepancy between the two slides not spotted. Spit kits are sent out in batches which, while recruitment is still open, is why the number of kits sent out will...
  2. Andy

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    Swedish investigation spoils Macchiarini cover-up at Lancet "New developments in the affair of the murderous trachea transplant surgeon and former Karolinska Institutet professor Paolo Macchiarini. The Swedish National Board for Assessment of Research Misconduct (NPOF) made a decision about a...
  3. Andy

    Exploring post-stroke fatigue from the perspective of stroke survivors: what strategies help? A qualitative study 2023 Delbridge et al

    Purpose Post-stroke fatigue is a research priority for stroke survivors and health professionals but there is limited evidence to guide management. We aimed to explore (1) the experience of post-stroke fatigue from the perspective of stroke survivors and their caregivers and (2) fatigue...
  4. Andy

    Utility of 2-day Cardiopulmonary Exercise Testing Protocol in LONG-HAUL COVID (LHC) PATIENTS: PRELIMINARY DATA, 2023, Abbasi et al

    Well, if you define PEM only as ‘Physically drained or sick after mild activity’ then you deliberately haven't correctly identified if your participants have PEM or not. Biased investigators will produce biased trials that will give biased results.
  5. Andy

    Preprint Dysautonomia and small fiber neuropathy in post-COVID condition and Chronic Fatigue Syndrome, 2023, Azcue

    "Patients diagnosed of ME/CFS should be previously diagnosed or meet the Fukuda et al.(6) criteria at the evaluation time."
  6. Andy

    Factitious disorder comorbid with borderline personality disorder and dysthymia: from [MUPS] to [FND] 2023 Lazzari et al

    "Medically Unexplained Physical Symptoms (MUPS) is an umbrella term to refer to conditions defined by physical symptoms not better described by another disorder20,21. According to estimates, about 20% (15% to 30%) of patients in primary care have chronic symptom disorders or medically...
  7. Andy

    Factitious disorder comorbid with borderline personality disorder and dysthymia: from [MUPS] to [FND] 2023 Lazzari et al

    Full title: Factitious disorder comorbid with borderline personality disorder and dysthymia: from medically unexplained physical symptoms to functional neurological disorder Summary. Introduction. In this study, we introduce the concept of comorbidity between factitious disorder (FD)...
  8. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Can't explain that as it works for me as well.
  9. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,450 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  10. Andy

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Trial By Error: More of the Same Old Nonsense from the “Oslo Chronic Fatigue Consortium” "It is extremely dispiriting to have to respond to yet another wail of desperation from psychologizing dead-enders who have lost control of the narrative over the nature and treatment of ME/CFS and long...
  11. Andy

    Managing persistent physical symptoms when being social and active is the norm: a qualitative study among young people in Denmark, 2023 Andersen et al

    Perhaps they anticipated being able to find yet more 'evidence' for the participants having 'incorrect illness beliefs'. My suspicions are raised about what exactly the authors mean by "The participants’ ...symptom experiences should thus be seen as a biosocial process.", which could yet be...
  12. Andy

    Managing persistent physical symptoms when being social and active is the norm: a qualitative study among young people in Denmark, 2023 Andersen et al

    Background An increasing number of young people in Western countries report persistent physical symptoms (PPS). PPS may disturb everyday activities and they may have negative consequences for later adult mental and physical health. Still little is known about how young people handle PPS in their...
  13. Andy

    Low-dose naltrexone use for the management of post-acute sequelae of COVID-19 2023 Bonilla et al

    Highlights The off-label use of low-dose naltrexone (LDN) is a potential drug intervention for the management of post-COVID conditions. LDN has anti-inflammatory and immunomodulatory properties which may benefit those with PASC where persistent inflammation is the causative pathway. LDN...
  14. Andy

    From ‘mental fog’ to post-acute COVID-19 syndrome's executive function alteration: Implications for clinical approach, 2023, Pallanti et al

    Abstract A common symptom of the neuropsychiatric Post-Acute COVID-19 syndrome (neuro-PACS) is the so called ‘brain fog’. Patients describe the brain fog as problems with attention, memory and mental fatigue. Brain fog is experienced by 9–55% of people for months after having contracted...
  15. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,403 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  16. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 2nd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid0YENfZHWeu5QCyMoz6a1u7wsTZ4o2DZC5FEs6Cd3VWzBgiTgkazWC44Ud4iqW3viZl Mastodon: https://med-mastodon.com/@s4me/111204141816454115
  17. Andy

    A hybrid register and questionnaire study of Covid-19 and post-acute sick leave in Denmark, 2023, O’Regan et al

    Abstract Post-acute sick leave is an underexplored indicator of the societal burden of SARS-CoV-2. Here, we report findings about self-reported sick leave and risk factors thereof from a hybrid survey and register study, which include 37,482 RT-PCR confirmed SARS-CoV-2 cases and 51,336...
  18. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 2nd Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02GkEEU62riNPCUKck5nKnHpNbnRgxVtX7N585jAjSTXFunQdPJauur3WGopfSrvhKl Mastodon: https://med-mastodon.com/@s4me/111199077426687033
  19. Andy

    Functional neurological disorder: A qualitative study exploring individuals' experiences of psychological services 2023 Staton et al

    Objectives Individuals with a diagnosis of FND report experiencing stigma in medical settings, however, there is a paucity of research exploring their experiences in psychological services. The aim of this research was to explore experiences of accessing UK psychological services, from the...
  20. Andy

    Review Functional neurological disorder and functional somatic syndromes among sexual and gender minority people: A scoping review 2023 Lerario, Perez et al

    Objective To describe the current literature on functional neurological disorder and functional somatic syndromes among sexual and gender minority people (SGM). Methods A search string with descriptors of SGM identity and functional disorders was entered into PubMed, Embase, Web of Science...
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