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Right, so not the entire medical profession, and therefore not the entire medical system, how else do you explain the progress that has been made with NICE and elsewhere? And further efforts to improve the situation aren't helped by making over the top statements; we should leave the...

The entire medical profession? Every single one? There is not one person in the medical profession who is treating patients differently?

Brain Atlas Paves the Way for New Understanding of How the Brain Functions "When NIH launched The BRAIN Initiative® a decade ago, one of many ambitious goals was to develop innovative technologies for profiling single cells to create an open-access reference atlas cataloguing the human brain’s...

Full title: Self-regulation of effort for a better health-related quality of life: a multidimensional activity pacing model for chronic pain and fatigue management Abstract Purpose To propose a comprehensive multidimensional model of activity pacing that improves health-related quality of life...

For those who can't see tweets this is a DecodeME post sharing the video below. "In this video I participated in the Decode ME study by supplying my DNA sample through the spit kit and discussed the aims, values and process of the research with a member of the Decode ME team and fellow ME/CFS...

ONG PEM on Twitter "From our NGO we support this request S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review https://s4me.info/threads/s4me-2023-open-letter-to-cochrane-request-for-action-on-the-me-cfs-exercise-therapy-review.34973/…"

"In 2012, a review by David Molyneux, a parasitologist at the Liverpool School of Tropical Medicine (LSTM), UK, and his colleagues, attempted to draw attention to the relationship between these diseases and mental health1. The researchers pointed to multiple studies showing higher rates of...

"The devastating effect that lymphatic filariasis and its associated stigma have had on Jidda’s life is common among people with neglected tropical diseases (NTDs). These conditions are caused by a range of pathogens, including bacteria, viruses, fungi and toxins. They are united by the fact...

Thread on study here, Gut microbiota dynamics in a prospective cohort of patients with post-acute COVID-19 syndrome, 2022, Liu et al, although there is only one reply highlighting results were similar to similar studies in ME/CFS.

If we were 'simply' recruiting Long Covid patients then I would imagine that we would see a larger number of post-Covid patients but we are recruiting post-Covid patients who have been officially diagnosed with ME/CFS, and it is that diagnosis which seems to be the issue. However, in general, I...

Presumably he is referring to this study, Brain imaging study request for crowdfunding

Highlights Multiple sclerosis (MS) patients experience fatigue and declines in cognitive speed. Whole-brain measures of metabolism have been associated with MS symptom severity. Prefrontal metabolism was uniquely associated with MS declines in cognitive speed. Prefrontal metabolism measures may...

Transcript has now been corrected.

Published papers for w/c 16th Oct. Facebook: https://www.facebook.com/sci4me/posts/pfbid02tdteoqq3A7FKHSHvtmTgXwbWzVY6QqBUUFDy8svzXDx2Uyu9odZSfsgJDFXpnbQrl Mastodon: https://med-mastodon.com/@s4me/111283544094288654

Also implies that if someone can't prove that they have had a Covid infection that they then can't have Long Covid.

Abstract It is well known that glucose serves as the main energy substrate for the brain, and emerging evidence emphasizes its involvement in both physiological processes and disease (traumatic brain injury, memory, epilepsy, etc.). Furthermore, the usefulness of mathematical modeling in...

"Results A total of 2232 subjects were enrolled, an average of 248 patients per year. France had around 55 million inhabitants 18 years and over during our study period [17], resulting in a rate of around 4.5 new in-hospital FDIS codings per million adults per year." So, from a societal...

Objective Patients with factitious disorder imposed on self (FDIS) seek medical care for deliberately falsified problems. Although a large amount of work has been published, the scientific literature lacks robust data on FDIS. The present study aimed to estimate the annual mean of in-hospital...