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  1. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 5th Feb. Facebook: https://www.facebook.com/sci4me/posts/pfbid0M3X1iqRS3xDzQGpRiBT7Nzz1yRUbpfz3nTv2s4XLczhVJhWpX4uHdFJ5wzLgMUx1l Mastodon: https://med-mastodon.com/@s4me/111912228692476569
  2. Andy

    Longitudinal NMR-Based Metabolomics Study Reveals How Hospitalized COVID-19 Patients Recover: Evidence of ... 2024 Ansone et al

    Full title: Longitudinal NMR-Based Metabolomics Study Reveals How Hospitalized COVID-19 Patients Recover: Evidence of Dyslipidemia and Energy Metabolism Dysregulation Abstract Long COVID, or post-acute sequelae of SARS-CoV-2 infection (PASC), can manifest as long-term symptoms in multiple...
  3. Andy

    Closed Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS

    Not sure if this is a new new study or just a relaunch of the above. From Solve ME/CFS: Register today for our February 28 Webinar “Hydrogen Water Dosing Study for ME/CFS: A New Clinical Trial ” "Sign up for our February 28 webinar with Fred Friedberg, PhD, who will discuss his clinical trial...
  4. Andy

    Review Stigmatisation in medical encounters for persistent physical symptoms/functional disorders: scoping review and thematic synthesis, 2024, Treufeldt

    Congratulations to the authors, as they add to the stigma they have identified by labelling the conditions covered as "persistent physical symptoms and functional disorders".
  5. Andy

    Lived Experiences of Cognitive Dysfunction in Fibromyalgia: How Patients Discuss Their Experiences and Suggestions for Patient Education 2024 Millar+

    "Data Collection The data used in this study was comprised of relevant excerpts of data from a larger dataset26 (see Crump & LaChapelle, 2022 for full methodological details about data collection) as well as novel data collected using identical methodology two years after the first data...
  6. Andy

    Lived Experiences of Cognitive Dysfunction in Fibromyalgia: How Patients Discuss Their Experiences and Suggestions for Patient Education 2024 Millar+

    Abstract Cognitive dysfunction (CD) is a common, impairing symptom experienced by persons with fibromyalgia (FM). This study explored how individuals with FM describe their experience of CD in an online peer support environment. Posts referencing cognitive symptoms were extracted from two...
  7. Andy

    Differences in psychiatric comorbidity patterns in patients diagnosed with chronic stress-induced exhaustion disorder and depression 2024 Wallensten+

    "The SED diagnostic criteria partially overlap with the diagnostic criteria for depression, and around one-third of individuals with SED also experience depressive symptoms (Glise et al., 2012). Similarities are also found with chronic fatigue (Billones et al., 2021; Lindsäter et al., 2023) as...
  8. Andy

    Differences in psychiatric comorbidity patterns in patients diagnosed with chronic stress-induced exhaustion disorder and depression 2024 Wallensten+

    Full title: Differences in psychiatric comorbidity patterns in patients diagnosed with chronic stress-induced exhaustion disorder and depression – A cohort study in the total population of Region Stockholm Highlights Chronic stress-induced exhaustion disorder (SED) and depression were compared...
  9. Andy

    Predictors of non-recovery from fatigue and cognitive deficits after COVID-19: a prospective, longitudinal, population-based study 2024 Hartung et al

    Summary Background Despite the high prevalence and major disability associated with fatigue and cognitive deficits after SARS-CoV-2 infection, little is known about long-term trajectories of these sequelae. We aimed to assess long-term trajectories of these conditions and to identify risk...
  10. Andy

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Trial By Error: Finally, Our Letter on Inflated Claims of FND Prevalence Is Published https://virology.ws/2024/02/09/trial-by-error-finally-our-letter-on-inflated-claims-of-fnd-prevalence-is-published/
  11. Andy

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    The link to Paypal has been removed from the Twitter account bio but so far nothing has replaced it. I'm surprised that so many researchers seem happy to put their name to something that, publicly at least, seems to have so little substance, other than an enthusiastic social media account.
  12. Andy

    The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium

    Recording of their Symposium from 21st Jan. Presentations: ME/CFS in Perspective | Professor Jonas Bergquist UK ME/CFS Biobank: A Resource for International Research | Eliana Mattos Lacerda and Caroline Kingdon The Netherlands ME/CFS Cohort and Biobank Consortium | Jos Bosch Establishing a...
  13. Andy

    Fatigue as hallmark of Fabry disease: role of bioenergetic alterations 2024 Gambardella et al

    The genetic analysis covers the GLA gene so we will be able to see if the problematic variants are represented in the DecodeME cohort.
  14. Andy

    Fatigue as hallmark of Fabry disease: role of bioenergetic alterations 2024 Gambardella et al

    Fabry disease (FD) is a lysosomal storage disorder due to the impaired activity of the α-galactosidase A (GLA) enzyme which induces Gb3 deposition and multiorgan dysfunction. Exercise intolerance and fatigue are frequent and early findings in FD patients, representing a self-standing clinical...
  15. Andy

    Is reduced heart rate variability associated with functional somatic disorders? A cross-sectional population-based study; DanFunD 2024 Jørgensen, Fink

    Abstract Objectives It has been hypothesised that functional somatic disorders (FSD) could be initiated by sympathetic predominance in the autonomic nervous system as measured by low heart rate variability (HRV). Earlier studies on the association between HRV and FSD are small case–control...
  16. Andy

    Pathogens associated with triggering ME/CFS - discussion thread

    Are they wanting illnesses that have been 'proven' to be triggers through research, or are patient reported triggers acceptable?
  17. Andy

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    Can exercise help treat long Covid? New study finds patients improve with self-paced approach https://www.statnews.com/2024/02/07/can-exercise-help-treat-long-covid-new-study-finds-patients-improve-with-self-paced-approach/
  18. Andy

    Unequal access to diagnosis of myalgic encephalomyelitis in England, 2025, Ponting and Samms

    The South West might well be the influence of Crawley and crew, especially for the Bristol and Bath area.
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