No, sorry, it isn't. Obviously though we will compare our genetic findings with that of other studies, and noting any reasonable connections if there are any.
"Conflicts of Interest: The authors declare no conflicts of interest. Dr Mantle is medical adviser to Pharma Nord (UK) Ltd."
I hope nobody will be surprised to learn that Pharma Nord "develops, manufactures and markets dietary supplements, herbal remedies and medical drugs." including ...... CoQ10.
Abstract
Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients...
Trial By Error: Disastrous Results for Professor Crawley’s Pediatric Online CBT Trial
Pediatrician Esther Crawley, Bristol University’s mathematically and factually challenged grant magnet, has released what seem to be the first outcome results from her much-hyped but fatally flawed FITNET-NHS...
Thanks for compiling this list Kalliope. Many of those links, for example the last three above, seem to point to the Apple site though - is that the same for anybody else?
Do we know who is funding the main part of the study? I can see that from the patient participation information sheet that part of it, that involves Audrey Ryback, is funded by AfME.
Public Funding
Via https://gtr.ukri.org/
DecodeME
https://gtr.ukri.org/projects?ref=MC_PC_20005
Forum thread - https://www.s4me.info/threads/decodeme-uk-me-cfs-dna-study-underway.15604/#post-268677
Back to Normal: A study of recovery narratives...
ME Research UK
Source - https://www.meresearch.org.uk/research/current-projects/
Current projects
Dr Doug Barrett,
The impact of ME/CFS on visual sensory processing and selective attention (PhD)
Prof. Jo Nijs,
Links between mitochondrial function and the autonomic nervous system in...
ME Association
Source - https://meassociation.org.uk/research/research-projects/ - [I'm not sure how up to date this list is, but it seems to be all that is available]
1. Dr Nicola Clague-Baker, University of Leicester
The ME Association is excited to announce a new research study that will...
Invest in ME
Source - http://www.investinme.org/ce-projoverview.shtml
A role for a leaky gut and the intestinal microbiota in the pathophysiology in ME, Simon Carding et al, Quadram Institute
“This project will determine if alterations in intestinal barrier function and/or microbiota exist...
Action for ME
Source - https://www.actionforme.org.uk/research-and-campaigns/our-research-work/our-projects-and-phds/
The first Clare Francis Research fellowship was awarded to Audrey Ryback. Audrey will be affiliated to the Genetics Centre of Excellence at the University of Edinburgh, with...
As per the thread title, this thread will be a compilation of currently active research funded by UK sources.
Previous threads:
What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)?
What ME/CFS research, funded by UK sources, is currently in process (as of...
Abstract:
Background
Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic neurological disease, with fluctuating symptoms affecting multiple body systems, including nervous and immune systems. ME/CFS affects around 250,000 people in the UK and 17 million people worldwide...
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a condition characterised by extreme fatigue, memory impairment, pain and other symptoms that vary from patient to patient. It affects about 0.9% of the population and is often triggered by an acute viral or bacterial...
Abstract
This project explores the "recovery narrative" within anglophone writing through a creative piece of nonfiction, as well as a critical reading of contemporary "illness memoirs". Representations of recovery in literature largely follow a particular, teleological, narrative arc. My...
Highlights
Studies were identified across the last century involving 1584 participants.
>85% of patients demonstrated clinically significant improvements.
>75% had a resolution or near resolution of symptoms in the short-term.
The evidence base shared limitations with that for other...
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