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  1. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    No, sorry, it isn't. Obviously though we will compare our genetic findings with that of other studies, and noting any reasonable connections if there are any.
  2. Andy

    Review Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview, 2024, Mantle et al.

    "Conflicts of Interest: The authors declare no conflicts of interest. Dr Mantle is medical adviser to Pharma Nord (UK) Ltd." I hope nobody will be surprised to learn that Pharma Nord "develops, manufactures and markets dietary supplements, herbal remedies and medical drugs." including ...... CoQ10.
  3. Andy

    International: Science for ME social media posts

    December News in Brief post to Reddit. https://www.reddit.com/r/cfs/comments/18vtwj3/news_in_brief_posts_for_december_2023_covering/
  4. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 25th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid0kYDes2TnukUDfnPFxRodbRYoZBfg2gjViiyKMvwYCoy7jdSpf6Ypq9zb7KyqH9ZAl Mastodon: https://med-mastodon.com/@s4me/111680099935746517
  5. Andy

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    Abstract Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients...
  6. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 25th Dec. Facebook: https://www.facebook.com/sci4me/posts/pfbid02CMpKpyW9oe5Zf5zrCUv5g6wCAr2WgmYH8PhjVQbCHq6C9tpqcWdrF6zT62gC7tFFl Mastodon: https://med-mastodon.com/@s4me/111674426720727646
  7. Andy

    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    Trial By Error: Disastrous Results for Professor Crawley’s Pediatric Online CBT Trial Pediatrician Esther Crawley, Bristol University’s mathematically and factually challenged grant magnet, has released what seem to be the first outcome results from her much-hyped but fatally flawed FITNET-NHS...
  8. Andy

    Compilation for ME articles in 2023

    Thanks for compiling this list Kalliope. Many of those links, for example the last three above, seem to point to the Apple site though - is that the same for anybody else?
  9. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Thanks. For the purposes of this thread then it doesn't count as not funded by a UK source.
  10. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Do we know who is funding the main part of the study? I can see that from the patient participation information sheet that part of it, that involves Audrey Ryback, is funded by AfME.
  11. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Public Funding Via https://gtr.ukri.org/ DecodeME https://gtr.ukri.org/projects?ref=MC_PC_20005 Forum thread - https://www.s4me.info/threads/decodeme-uk-me-cfs-dna-study-underway.15604/#post-268677 Back to Normal: A study of recovery narratives...
  12. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    ME Research UK Source - https://www.meresearch.org.uk/research/current-projects/ Current projects Dr Doug Barrett, The impact of ME/CFS on visual sensory processing and selective attention (PhD) Prof. Jo Nijs, Links between mitochondrial function and the autonomic nervous system in...
  13. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    ME Association Source - https://meassociation.org.uk/research/research-projects/ - [I'm not sure how up to date this list is, but it seems to be all that is available] 1. Dr Nicola Clague-Baker, University of Leicester The ME Association is excited to announce a new research study that will...
  14. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Invest in ME Source - http://www.investinme.org/ce-projoverview.shtml A role for a leaky gut and the intestinal microbiota in the pathophysiology in ME, Simon Carding et al, Quadram Institute “This project will determine if alterations in intestinal barrier function and/or microbiota exist...
  15. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Action for ME Source - https://www.actionforme.org.uk/research-and-campaigns/our-research-work/our-projects-and-phds/ The first Clare Francis Research fellowship was awarded to Audrey Ryback. Audrey will be affiliated to the Genetics Centre of Excellence at the University of Edinburgh, with...
  16. Andy

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    As per the thread title, this thread will be a compilation of currently active research funded by UK sources. Previous threads: What ME/CFS research, funded by UK sources, is currently in process (as of end June 2019)? What ME/CFS research, funded by UK sources, is currently in process (as of...
  17. Andy

    Funded: ME / CFS: An evidence map of research studies and how these address key themes in the JLA PSP research priorities

    Abstract: Background Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic neurological disease, with fluctuating symptoms affecting multiple body systems, including nervous and immune systems. ME/CFS affects around 250,000 people in the UK and 17 million people worldwide...
  18. Andy

    Funded: Role of pharmacological activity of autoantibodies in ME/CFS, Dmitry Veprintsev

    Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a condition characterised by extreme fatigue, memory impairment, pain and other symptoms that vary from patient to patient. It affects about 0.9% of the population and is often triggered by an acute viral or bacterial...
  19. Andy

    Funded: Back to Normal: A study of recovery narratives (studentship)

    Abstract This project explores the "recovery narrative" within anglophone writing through a creative piece of nonfiction, as well as a critical reading of contemporary "illness memoirs". Representations of recovery in literature largely follow a particular, teleological, narrative arc. My...
  20. Andy

    Review Hypnosis and suggestion as interventions for functional neurological disorder: A systematic review 2023 Connors et al

    Highlights Studies were identified across the last century involving 1584 participants. >85% of patients demonstrated clinically significant improvements. >75% had a resolution or near resolution of symptoms in the short-term. The evidence base shared limitations with that for other...
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