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The review status of the first of the three (known) requests for addition of terminology to the SNOMED CT UK Edition (or potentially for addition to SNOMED CT International Edition) Request Submitted 19/08/20 Request ID: 32731...

According to Trish Greenhalgh there is a committee (Professional Standards Board) working on this, under chair, Prof Maureen Baker CBE:

Someone has also given her the link to the Voices from the Shadows film and the name of Dr Nigel Speight, and Tymes Trust has responded to her. I've given her the link for the 1999 BBC Panorama transcript, as an example of how long this has been going on for...

Should be Goudsmit & Gadd, 1991

Thread: Someone has provided Felicity Callard with contact details for Jane Colby and Tymes Trust and links for the Times article: https://www.thetimes.co.uk/article/chronic-fatigue-syndrome-me-families-accused-of-child-abuse-np968v9dt and the Jane Colby document: False Allegations of...

Thread continued: Note: Dr Chris Bates is Research & Analytics Director for TPP SystmOne. TPP SystmOne is the electronic health records system used by many NHS England GP practices for patients records. Note also that @Dr2NisreenAlwan's Twitter posts cannot be viewed as her account is...

Twitter thread here discussing status of development of codes for "Long COVID-19" for primary care, SNOMED CT and ICD-10:

And still no comment that I can see from Greenhalgh on yesterday's release of https://evidence.nihr.ac.uk/themedreview/living-with-covid19/ Living with Covid19 A dynamic review of the evidence around ongoing Covid19 symptoms (often called Long Covid).

No comment from Trish Greenhalgh yet on today's HIHR Living with Covid19 - A dynamic review of the evidence around ongoing Covid19 symptoms (often called Long Covid)

NIRH = UK National Institute for Health Research NIHR: Living with Covid19, 15 October 2020 A dynamic review of the evidence around ongoing Covid19 symptoms (often called Long Covid). https://evidence.nihr.ac.uk/themedreview/living-with-covid19/ (...) Diagnostic uncertainty As yet there is...

https://www.medrxiv.org/content/10.1101/2020.10.13.20211854v1 This article is a preprint and has not been certified by peer review [what does this mean?]. It reports new medical research that has yet to be evaluated and so should not be used to guide clinical practice...

I wouldn't hold your breath when it comes to NHS England. £10M for kickstarting "Long Covid" specialist services across England would not stretch very far - especially if the wish list includes:

Not a term I am familiar with, either: https://www.fons.org/resources/documents/Creating-Caring-Cultures/EmotionalTouchpoints-.pdf "Using Emotional Touchpoints to Understand Experiences of Care What are emotional touchpoints? ‘A touchpoint is any moment where a user interacts in some way...

Preprint paper here: Persistent symptoms after Covid-19: qualitative study of 114 long Covid patients and draft quality criteria for services Emma Ladds, Alexander Rushforth, Sietse Wieringa, Sharon Taylor, Clare Rayner, Laiba Husain, Trisha Greenhalgh This article is a preprint and has not...

URL returning a 404: Try: https://worldneurologyonline.com/wp-content/uploads/2020/07/WFN_JJ.pdf (page 1 and continued on page 3)

https://www.bmj.com/content/371/bmj.m3871 Editorials Neuropsychiatric complications of covid-19 BMJ 2020; 371 doi: https://doi.org/10.1136/bmj.m3871 (Published 13 October 2020) Matthew Butler, NIHR academic clinical fellow neuropsychiatry1, Thomas A Pollak, NIHR clinical lecturer in...

Split from Possibility of ME or PVFS after COVID-19, Long Covid ******** https://www.bmj.com/content/371/bmj.m3871 Editorials Neuropsychiatric complications of covid-19 BMJ 2020; 371 doi: https://doi.org/10.1136/bmj.m3871 (Published 13 October 2020) Matthew Butler, NIHR academic clinical...

Seems like an amateur platform with little or no editorial scrutiny.

I also find the statement: unhelpful. Note that the publication referred to above as "the new ICD for primary care" is the ICD-11 PHC*, which is still in development [1]. ICD-11 PHC is a clinical guideline written in simpler language intended to assist non-mental health specialists...