Search results

Indeed. And the application by Paul Davis to extend an invitation to RiME (Campaigning for Research into Myalgic Encephalomyelitis) was rejected by the Countess of Mar.

The dates remain the same - both PDFs are dated "30 September 2020". The differences are: 1 The original text of the position statement is signed: "Yours sincerely, Margaret Mar and Denise Spreag On behalf of Forward ME" the revised version is signed: "Yours sincerely, Margaret Mar On...

A PDF of the revised position statement (which is still dated 30 September 2020) can be downloaded from the site of ME Research UK: https://www.meresearch.org.uk/wp-content/uploads/2020/10/Forward-ME-Position-Statement-Spinal-Surgery-and-ME-15.10.20.pdf The original, jointly signed PDF (dated...

Indeed. #MEAction UK had also worked closely on briefing documents for (the now Vice-chair of Forward-ME) Carol Monaghan MP. What will happen to that working relationship now #MEAction UK is persona non grata? I found myself in a similar situation, in April 2018, as documented on this forum. My...

Here is the full statement: https://www.meaction.net/2020/10/20/meaction-uks-membership-of-forward-me/ October 20, 2020 #MEAction UK are sad to announce that we are no longer part of Forward-ME. #MEAction UK worked hard on and fully supported the Forward-ME statement on spinal surgery and...

I think the forum would be well advised to retain its independence.

Also, new clinical terms for classification and terminology systems need to be unique. What happens if we get, say, a "Corona Virus Disease 2023" or "COVID-23" which also results in its own post viral sequelae and long term symptoms? There may be a need, clinically, and for data analysis to...

I predict that the WHO will list "Long Covid" under Synonyms under whatever term is eventually approved for addition to ICD-10, ICD-11 and SNOMED CT.

The WHO, ICD and SNOMED CT agreed official term and associated coding for the virus (and its associated terminology and codes, for which there are a significant number) is already "COVID-19" - not "COVID" or "Covid". I have considered from the start that the WHO, SNOMED International, NICE...

@Robert 1973 and @Wonko Although development of this guideline is being fast-tracked under the NICE Rapid Guideline process, I assume there will be a public consultation period before the guideline is finalised where your concerns can be raised; the Scoping document was put out for consultation...

Guideline Project documents: https://www.nice.org.uk/guidance/indevelopment/gid-ng10179/documents Guideline Scope published (30 October 2020): https://www.nice.org.uk/guidance/gid-ng10179/documents/final-scope Consultation comments published (30 October 2020)...

See thread UK - NICE guideline on Long Covid to be produced Posts #46, #47, and #48 for text of Guideline Scope document and links for other Project documents: https://www.s4me.info/threads/uk-nice-guideline-on-long-covid-to-be-produced.17142/page-3#post-298114 Project documents...

[ED: My highlighting in brown] Themes to be excluded from the evidence search • Management of acute COVID-19 (symptoms experienced for up to 4 weeks) • Management of other conditions with similar features to post-COVID-19 syndrome, for example post-intensive care syndrome and myalgic...

3 Who the guideline is for The guideline will be of interest to: • Health and social care practitioners, commissioners and providers of NHS-funded healthcare services • People using services, their families and carers. It may also be relevant to providers of private healthcare services. 4...

NICE Guideline Scope https://www.nice.org.uk/guidance/gid-ng10179/documents/final-scope COVID-19 guideline scope: management of the long-term effects of COVID-19 NHS England and the Chief Medical Officer of the Scottish Government have asked NICE and SIGN to develop a guideline on the...

https://nice-newsroom.prgloo.com/news/nice-sign-and-rcgp-set-out-further-details-about-the-uk-guideline-on-management-of-the-long-term-effects-of-covid-19-press-release 30 Oct 2020 NICE, SIGN and RCGP set out further details about the UK guideline on management of the long-term effects of...

Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid https://nice-newsroom.prgloo.com/news/nice-sign-and-rcgp-set-out-further-details-about-the-uk-guideline-on-management-of-the-long-term-effects-of-covid-19-press-release 30 Oct 2020 NICE, SIGN and RCGP set out...

Cue snouts in troughs.