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  1. Sean

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    The timing was fortunate for me this year as the donation period covers three paydays, instead the usual two. So still one more donation to come. :thumbsup:
  2. Sean

    Suicidal ideation in non-depressed individuals: The effects of a chronic, misunderstood illness, Devendorf et al, 2018

    I have never lost the desire to have an active 'normal' life. Just hasn't been an option for me since getting ME. Frustration, anger, grief, despair, etc, are not depression.
  3. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    Our fine fellow of a Prime Minister thinks that those on social security should have it first, or lose their benefits. :mad:
  4. Sean

    Video: ME/CFS Alert, Episode 119: Interview with Tom Kindlon

    Thanks, Tom & Mr King. :thumbup: Yes, we can tell that because nearly every third of your fine words is perfectly clear. *he says in a broad north Australian drawl* :p
  5. Sean

    BMC family practice integrated GP care for patients with persistent physical symptoms, 2020, Chalder et al

    You are too kind. I am less so with each new 'paper' the likes of Chalder spew out. The only words I ever want to hear from them now are something like: 'I was wrong, and I unreservedly apologise for any and all harm I have done to millions of sick, vulnerable, innocent patients and their...
  6. Sean

    Chronic Fatigue Syndrome the roles of perfectionism and metacognition in co-morbid depression and anxiety, 2020, Wright (D.Clin.Psy.)

    Exactly. It is not anti-psych, it is anti-inappropriate psych. Nobody is rejecting the existence of mental and social influences upon our lives. They are rejecting a particular morality-laden, politically charged, and unscientific interpretation and application of them, that is causing great...
  7. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    These people are still trying to ignore the fundamental fact that the virus sets the rules, they are very hard and unforgiving rules, and all we humans can do is learn those rules and stick to them like limpets. Normal life is over until we have a good vaccine, which isn't going to be anytime...
  8. Sean

    BPS attempts at psychologizing Long Covid

    Until MUS starts getting shoved down their throats. These people have no idea what is coming.
  9. Sean

    A prospective study of fatigue trajectories among in-centre haemodialysis patients, 2020, Picariello, Moss-Morris et al

    I used to maintain dialysis machines, including in people's homes. Those patients are tired and unwell at least 50-60% of the time, are never 100% well, and have a bunch of serious complications from the kidney disease. I wouldn't wish it on anybody.
  10. Sean

    Genesis and dissemination of a controversial disease: chronic Lyme, 2020, Gocko et al

    Nothing new under the sun. Power and privilege have never liked being challenged.
  11. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We additionally observe that individuals who had an initial symptom of dyspnea are significantly more likely to develop long-term symptoms. Interesting. Some form of hypoxia?
  12. Sean

    Blog: The Science Bit by Brian Hughes

    Good intentions are not only not enough, they can even be your worst enemy by blinding you to any harm you are doing. The person you must be most careful to avoid fooling is yourself. But it is perfectly acceptable, of course, for those Very Important People to ruthlessly smear and dismiss...
  13. Sean

    Clare Gerada: influence on UK medical practice and ME/CFS management

    The likes of Gerada love demanding that other people pay the price for her big brave tough medicine.
  14. Sean

    A prospective study of fatigue trajectories among in-centre haemodialysis patients, 2020, Picariello, Moss-Morris et al

    For example, once fatigue develops as a consequence of underlying disease processes, interpretations of fatigue as uncontrollable and lasting, and unhelpful thinking styles in response to fatigue, such as catastrophizing, symptom focusing, or perceiving fatigue as a sign of bodily damage (damage...
  15. Sean

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Nailed it. I call it the 'optimism ideology'. Always try to make the best of your situation? Sure. No argument there. But beyond that it quickly becomes toxic delusional nonsense. And it almost always ends up there.
  16. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I live on my own in a rural area, with minimal public transport that just isn't practical for me (basically school buses, and several hundred metres to the bus stop). So having a car and driving it is a necessity. But I long ago stopped driving at night, and any more than I need to. :(
  17. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yep. The marketing spin is being churned up as we speak. Not that I expected any better from them. :grumpy: If Trish Greenhalgh, et al, are genuinely serious about doing the best they can for their patients, then they must stop being so chummy with the establishment hacks who got us into this...
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