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This change in attitude away from rehabilitative interventions is worrying, Not if they don't work. I do like a good science burn with my porridge in the morning. Goalpost shifting is not science. At least they are admitting, and in some detail, that they can't meet the minimum standards...

'Threat' is a very provocative word to use, especially in this context. Though we are certainly a threat to those in power who don't like to be questioned about their incompetence and misuse of that power.

Translation: We don't know what it is or why it happens, but can't admit it.

Bullshit Distribution Society

Why can't they just say 'we don't know'?

CFS has been a defined diagnostic entity since 1991 (Sharpe et al., 1991). Holmes 1988? https://pubmed.ncbi.nlm.nih.gov/2829679/

Both causality and direction of causality.

This.

Well that's okay then.

other poorly understood conditions (such as chronic pain and functional disorders) Surely if a condition is poorly understood, it cannot be safely classified as 'functional'?

The serial misrepresentation of this stuff by the likes of Miller seriously limit their claim to be the aggrieved party in the debate, and to be treated with 'due' respect. There is simply no excuse left at this stage for them to not know the problem with this misrepresentation.

I have always been suspicious of the people without boy's bits. :cautious: :p

Which, of course, still does not demonstrate a causal link, merely that it is not ruled out. A necessary but hardly sufficient step. They also need to rule out the quite reasonable possibility that the apparent onset time point is not just the escalation of a pre-existing disease process from...

I got the cold feet symptom a few times during my earlier years of ME. When I say cold, I do mean cold. Distinctly and abnormally chilly to the touch, including other people's touch. In the middle of a humid tropical summer. o_O No idea of its role in anything, but it did occur at the times I...

...they’ll bring a range of physical health experts into each session as well as lived experience from people recovering from COVID. What could go wrong with that? I would have thought that those who recovered are not actually a model for those who don't. Useful for a research compare and...

I tried methylphenidate. No overall benefit. Though possibly of some use as an occasional single-dose for a specific event/activity, in the same way that painkillers can be. But not enough for it to be recommended for ME.

French po-mo. :rolleyes:

with good explanations of the pathophysiology of functional disorders and effective encouragement and education of patients. How does that work for bogus explanations? What is the proof that it works, beyond modest shifting of scores for some patients on self-report measures?

Aaaaaaaaaaarrrrrggghh! But, yes, there is some good stuff in there.

...or a distorted sense of smell (parosmia). “Sometimes this is described as a smell of burning rubber, a pungent chemical smell or raw sewage,” said Prof Carl Philpott, director of research and medical affairs for Fifth Sense, a charity supporting people with smell and taste disorders...