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I think I might have the same problem.

perpetuating factors—for practical management the most important factors are those that perpetuate the illness and consequently act as barriers to recovery, including the unmodifiable behaviour of Michael Sharpe and colleagues.

And another pic for the "typical ME sufferers in the media" album.

Here's a (rather long) interview of the authors of the hoax articles where they discuss the ethics of the hoax (apparently - haven't had time to watch it myself yet):

Maybe they should practise what they preach and make a small accomodation to support PwME by changing the timeout setting.

The pictures don't seem to fit the tone or subject of the article very well. 5 photographs (selfies - all labelled photo - Emma Owen) of her looking glamorous? Sipping a cocktail, in front of an expensive car, made up with a dog, on a balcony in an exotic location ...

The press is full of the benefits of fibre and wholemeal bread this morning, for example: https://www.bbc.com/news/health-46827426

The story continues ... https://www.wired.com/story/how-a-dollar40-million-nutrition-science-crusade-fell-apart/

This bit about cholesterol and eggs made me laugh: This has a very familiar ring to it, as does much else in the article.

AfME were present on this thread where I posted on 31st August 2018: https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/page-6#post-100457 And I've posted directly to AfME here on other threads on the same point previous to...

Isn't that a charity run largely by women with a very good nose for PR? Valerie Eliot Smith should be careful what she wishes for.

By the way, I have improved over the last 5 years, so AfME should be listening to me. I've done it by not following their advice. I've done it by doing my best to create the conditions where improvement can occur if it's going to, which means cutting back all activity you can to baseline if...

No apologies necessary. But this: Describes me perfectly. It leaves out PEM and all the rest of it, but what is in that description applies to me. Their advice in the leaflet about pushing boundaries is totally inappropriate, it would lead to a deterioration to moderate or severe. I've tried...

I read that as "integrative medicine for the undeserved". I was probably still under the influence of reading What on earth is that about?

You forgot coffee :emoji_coffee:

Sounds like an easy job. I wonder what interested her about the National Center for Complementary and Integrative Health and their surveys.

Good, because it doesn't apply to people who are mild. Nope, their advice is just as fucking useless for mild sufferers. Excuse me, in my annoyance I used a word which I now regret. "useless". I should have said "catastrophically and life changingly dangerous". If they had been asked to...

This should have been the headline. In fact it should have been the whole article, and placed in the classified ads section.

Points 2 and 7 of this helpful summary by @Michiel Tack of a recent research paper: https://www.s4me.info/threads/estimating-prevalence-demographics-and-costs-of-me-cfs-using-large-scale-medical-claims-data-and-machine-learning-2018-proskauer-et-al.7279/#post-134248

Nothing our opponents would love more than to watch us bickering about the patriarchy. If Valerie Elliot Smith has an idea for an additional approach and would like to implement it, I'm sure we'd all be very grateful. And if she'd like to recruit on the basis of gender in accordance with her...