Yes, I've had it from day 1. Kidney area. Also higher up the back in the middle. It's a warning sign that I'm close to overdoing it, and goes away again when I rest.
3 months before my ME started I had severe pain in the kidney area which left me unable to move off the sofa for days. I had all...
I'm not saying she should reveal her sources. I'm saying that if she can't, she shouldn't expect us to accept her evidence without question.
Critical readers will want to weigh up the evidence, so I think it's a fair analogy.
It is, I've seen it in action.
I haven't referred to the fact that...
I wasn't aware that the person who gave her the video was a client protected by lawyer-client privilege. And saying to a judge "I have the facts but I mustn't share the details" will usually lead to him concluding that you haven't discharged your evidential burden and wondering why you bothered...
VES can't have it both ways. On the one hand she is claiming to be showing us how we are perceived from the outside and making suggestions as to what we should be doing about it. I expect she hoped her views would be accepted and appreciated.
However, when someone politely tells her how her...
She's trying to sound vaguely menacing, without actually threatening anything. Typical lawyer bluster. If she's hinting at a possible action for libel, she'll end up having to sue herself for choosing to publicise Trish's comments on her website. I think the most likely reason why she published...
Yes but normally the older generation have made a better world for the younger generation, so they are entitled to be resentful, jealous and moan a bit. We have made a worse world for the millenials and are now sticking the boot in and trying to blame them by pretending it's all about screen...
Are we the first generation that has been so vicious in our contempt and scorn for the following generation? Having benefited from free university education which virtually guaranteed a good job, being able to get on the housing ladder, having a good pension to look forward to, and using all the...
Well we are in agreement there. I have always thought very highly of her and appreciated her efforts for the ME community (nervous about even using that phrase now). So I was very surprised and disappointed to see such a divisive and potentially damaging blog.
It took me a long time to go...
Nice to see them expressing enormous gratitude to those who reviewed the toolkit. Now that we've reviewed it I wonder if they'll be expressing the same enormous gratitude towards us? Unless "reviewing" in the AfME world just means nodding and saying "yes, that's great".
Well here's my take on VES's second blog.
It basicially consists of:
1. A friend told me that the PCC (which no longer exists) told him that ME patients were a nightmare.
That it? As a lawyer (who can't seem to stop herself from waving her credentials in our face at every opportunity), surely...
Aye :emoji_hand_splayed:.
Fabulous letter.
With regards to evidence, from their statement here:
https://www.actionforme.org.uk/news/pace-trial-and-behavioural-treatments-for-me/
So they claim that the therapies they recommend are evidence-based, but their only evidence seems to be "BACME...
Well I have now blasphemed openly so the atmosphere is decidedly frosty. I was half expecting to be purged, but they've just booked me again for the next semester. Must be less trouble than getting rid of me I suppose.
Looks like our positive couple gets around a bit:
https://www.ignatianspirituality.com/24807/why-gratitude
https://www.penderelstrust.org.uk/adviceEmployer.php
Still, no need to use a picture of a real M.E. sufferer, it's not as if AfME actually know any.
I think it's marvellous, I feel encouraged and supported to leave my sofa and show the world that with the right help and support I really can go for a long walk. Thank you AfME.
Apparently this is one of a series of events, here's the next one:
This event fits in with AfME's current position...
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