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  1. TiredSam

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    The word invalid has two meanings, depending on how you pronounce it. At the moment we are being categorised as the wrong one.
  2. TiredSam

    Ron Davis speaks at University of Texas at Dallas

    I have lived in my village of 1500 inhabitants for 20 years. There's a guy I always thought was a little odd - when I saw him walking in the woods and greeted him he just looked at me as if he didn't quite understand. Found out 16 years later that he has ME. It was a friend of my wife who told...
  3. TiredSam

    Campaigners in Scotland call for more ME funding

    From the above-referenced article: https://www.pressandjournal.co.uk/fp/uncategorized/1402870/exclusive-north-east-family-speak-of-me-ordeal/ I think it is very important to be concerned about what might happen when politicians are asked to consider the problem of lack of specialist care for...
  4. TiredSam

    Positive Health Online: ME/CFS, NLP and the Lightning Process in the Looking Glass

    @Wonko I think that's called "acceptance". I substitute "Meh" with a swearword, but it's much the same thing.
  5. TiredSam

    Unrest - reviews and general articles

    I've commented on this one (not the first Sam, the second, currently awaiting approval*). I find the idea of someone with a small personal blog suddenly being love-bombed by thousands of grateful ME sufferers quite funny for some reason. Not saying we should do it, just that I find the idea...
  6. TiredSam

    ME generation want better care across Scotland

    People try, to put us down ...
  7. TiredSam

    United Kingdom: The Royal Society of Medicine

    I suspect one reason that Simon Wessely seems so unperturbed when we gain ground in the PACE debate is that he is busy making progress on a number of other fronts, many of which we are unaware of.
  8. TiredSam

    Resources for Parents with ME - helping children come to terms with chronic illness

    Sorry but I disagree, if you are worried I would read everything you can about it and then follow your own judgement, including any useful nuggets you might have picked up from your reading and disregarding any nonsense you might have had to wade through. As the father of 3 boys, here's a book I...
  9. TiredSam

    United Kingdom: The Royal Society of Medicine

    Is it just me or did anyone else feel uneasy hearing the phrase "end of life care" coming out of Wessely's mouth? He does have a history of taking standard terms and giving them a whole new meaning before anyone realises what he's up to.
  10. TiredSam

    Parents trying to cure autism by giving children MMS/bleach, article, investigation, petition

    Only here. Apparently they've had them in the Andromeda Galaxy for quite some time. They're light years ahead of us.
  11. TiredSam

    New German guideline for ME published today

    Something about sunbeds actually.
  12. TiredSam

    New German guideline for ME published today

    Thanks. To be honest, the woman next to me did it just as quickly. She started to stand up, so I jumped up and barged her out of the way to hand my paper in first. I would have been devastated if she'd beaten me.
  13. TiredSam

    New German guideline for ME published today

    You can count me. I will be German soon. Brexit and all that. Passed my language test with 96%, passed my citizenship with 100% and broke the record at the test centre. For the citizenship test we had 2 hours, but it was on a Saturday afternoon and the examiner, wearing a Hoffenheim scarf and...
  14. TiredSam

    Guideline "Tiredness" by DEGAM

    They are a very mixed bunch, and just making it to the meeting is too much for some of them. A couple of them have been to fatigatio conferences. Here's a bit of local activism when a father decided to get up and do something...
  15. TiredSam

    Guideline "Tiredness" by DEGAM

    Here's a link to my blog: http://forums.phoenixrising.me/index.php?threads/my-trip-to-the-charite-in-berlin.44474/ List of all parts of the blog is on page 4 of that thread.
  16. TiredSam

    New German guideline for ME published today

    http://forums.phoenixrising.me/index.php?threads/blog-on-a-said-to-be-bad-official-german-report-on-me-cfs-german-with-link-to-english-translation.43277/
  17. TiredSam

    Guideline "Tiredness" by DEGAM

    They say it's completely shit. Some of them are unable to work and have finally decided to stop fighting and accepted a diagnosis of depression and been on a rehab (Kur) just to get half a pension. The woman from the film "In Engen Grenzen" is in my group, the Kur nearly killed her. There's the...
  18. TiredSam

    New German guideline for ME published today

    It actually backfired horrendously and resulted in the Robert Koch institute report.
  19. TiredSam

    New German guideline for ME published today

    I'll translate anything you write into English for you.
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